Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

Should I have surgery???

10/2018 | 4 Comments

Hi everyone. I have tonic colonic grand mail seizures. I have them, usually, only every few months. Sometimes more frequently, but sometimes less too...
Apps for Apple watch

10/2018 | 7 Comments

Our son, 14, was diagnosed with tonic clinic seizures that accure mostly in his sleep. Has anyone tried monitoring devices? We are looking at a few...
Vagus nerve stimulator

09/2018 | 2 Comments

So I got my vns surgery done on 8/29/18 I was sore and uncomfortable at first but now over this pattern weekend I started getting migraines,blurred...
3rd surgery at Barrow in Phoenix

09/2018 | 1 Comments

I’ve had 1 surgery in Albuquerque and 1 at Barrow also. Now they’re looking at doing a 3rd surgery at Barrow again after finishing a MEG test. How do...
Personal considerations for surgery

08/2018 | 7 Comments

Hi! I am trying to understand the pros and cons that people have considered while trying to decide whether to go through with epilepsy surgery or not...
DBS for Epilepsy

08/2018 | 3 Comments

Hey, My name is Alli. I haven't really connected with a lot of people with Epilepsy. I started having seizures when I was about 10 years ago and have...
VNS limitations

08/2018 | 2 Comments

I'm considering VNS, but a friend was talking to me and had me wondering if there were any limitations after you have the surgery. Like is there...
Contemplating surgery

07/2018 | 5 Comments

My daughter starting having seizures several years after being in a severe car accident. She's gone through several medicals to control them. She's...
VNS- Vagal Nerve Stimulation

04/2018 | 2 Comments

I have dealt with Epilepsy for over 30 years. My seizures were controlled by Dilantin for all those years. For some reason lately, Dilantin does not...
RNS Neuropace surgery help

04/2018 | 1 Comments

Hello I am trying to raise money to help cover my bills while I am recovery from RNS surgery. My company would not approve me for Short-term or Long...
RNS effects on mood

03/2018 | 4 Comments

I have taken a ton of medications...6? Nothing fully controls my seizures, and they all made me so tired and depressed and distracted. Has anyone had...
Removal of VNS

03/2018 | 1 Comments

I was wondering if anyone had a VNS removed? I have had mine for 4 years and it was giving me problems. I had it removed yesterday. I am in the worst...
Embrace from Empatica

03/2018 | 3 Comments

has anyone tried embrace from empartica? https://www.empatica.com any feedback?

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