Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

VNS

10/2017 | 3 Comments

I just recently had a vns put in for my epilepsy. It all happened very fast after I made the decision to have it put in. They just squeezed me in...
Left temporal lobe abrasion

09/2017 | 2 Comments

My Dad has epilepsy and has recently moved in with me as I have realized that his memory loss makes it unsafe for him to live alone. He had a surgery...
VNS or RNS Device Experience Input

09/2017 | 28 Comments

Hello everyone. I am a masters student attending Arizona State University. I'm currently working on a project related to the VNS and RNS devices. I am...
Corpus callosotomy surgery

09/2017 | 1 Comments

My 15 years old son has severe epilepsy. He is severely developmentally delayed (no speech, and communication difficulties) He has around 3-10...
BETH

09/2017 | 3 Comments

I was told this week that I have now been seizure free for one year and I can drive once again!..I am ecstatic!..I had the RNS implant and it has been...
Post Surgerical Experience

08/2017 | 2 Comments

Hi everyone! I just wanted to share that I recently underwent a stereotactic laser ablation of the left mesial temporal lobe for left mesial temporal...
Double vision after surgery

08/2017 | 6 Comments

I had surgery to remove a lesion in my right temporal lobe 1 month ago in July 2017 and now have double vision. The surgeon said it would go away but...
Which surgery?

07/2017 | 2 Comments

Hi everyone, I've had epilepsy for over a year and the medications that I have tried do not work, or don't work very well (I've had 11 seizures and am...
NeuroPace Failure

07/2017 | 2 Comments

Hello, I had brain surgery to install the NeuroPace device April 5th. Since then my grand mals have gone from once every month to ever 2 two months to...
Epilepsy

07/2017 | 2 Comments

On May 19th the father of my children passed away due to a seizure he had surgery on March 21st to get vns to help with his seizure but it didn't do...
VNS question

07/2017 | 5 Comments

I have had epilepsy all my life (almost 40 years). As of right now, it is relatively under control via medication and a VNS. For a variety reasons I...
Brain surgery

06/2017 | 6 Comments

So I'm about to get this double brain surgery which is when they put grids on my brain in the first one and make me seize with it on and then find the...
Considering lesion removal surgery

06/2017 | 1 Comments

I am now to the foundation and it looks there is a wealth of information here. I am being faced with surgery to remove two lesions in my brain. I met...
Vns and ultrasound therapy

06/2017 | 0 Comments

Yesterday I started physical therapy due to severe lower back pain. My neuro recommended the physical therapy. His theory is less pain reduction in...
VNS for drop seizures

05/2017 | 0 Comments

Hello I was wondering if any one ever had a VNS device put in them to help prevent drop seizures. My doctor wants me to have one put in me to help...

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