Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

SEEG question!

05/2017 | 2 Comments

Hi! Sorry for the vanity question, but I'm wondering if anyone has had the SEEG test/surgery and if they have to shave your head? Thank you!!!!
My VNS Overheats and Vibrates

04/2017 | 1 Comments

I'm seeking for some sort of answer to what recently happened to me. I went through a VNS surgery 2years ago and my epileptologist went on to increase...
Embrace and SmartWatch

04/2017 | 2 Comments

Hi My 10 year-old daughter has Epilepsy. She has had seizures twice in the past and both of them were at night. I have been monitoring her at night...
NEUROPACE

03/2017 | 1 Comments

Hello...I'm fairly new to this site since yesterday..I got diagnosed in my 20's. I'm 41 now and life has been very hard as I'm sure many of you know...
Hard Decisions

03/2017 | 2 Comments

My son is 6 and has run the gammet of medications, yet still have 20+ seizures a day. We have an appointment on April 12th to discuss the VNS or the...
VNS bad side effects

03/2017 | 2 Comments

Has anyone had to have their VNS taken out and if so why? I wish to heck up and down that I would NOT have got it! how about you others?
VNS therapy

03/2017 | 11 Comments

I am having VNS therapy done March 27th. Ive done my research and have watched the video they gave me about it. The only thing im nervous about...
Left temporal lobectomy

02/2017 | 1 Comments

My daughter is 11 years old and we are considering a left temporal lobectomy. Just wanted to hear others experiences who have had this done. How was...
When is it worth getting VNS

02/2017 | 4 Comments

I've had epilepsy since I was 6 and am now 30. I've tried many medications & I've had many doctors due to them moving to other states. My current...
Is a second operation worth it?

01/2017 | 0 Comments

Hello. I had a temporal lobectomy back in 2007. I think I get a complex partial seizure again once a month. I am thinking about a second operation. I...
Can you bring your own Hospital Gowns?

01/2017 | 1 Comments

Is it possible to purchase your own hospital gowns before going to the hospital? Next month, I plan to go to the hospital to do an EEG test and that...
what is like to have the pacemaker

12/2016 | 1 Comments

im 29 and my doctor offered me this device so i have some questions, how does it affect my voice ? do i feel it ? can it be a bother during sex ? im...
Left Frontal Lobectomy

12/2016 | 1 Comments

Hey all, I'm a 24 year old female, have had epilepsy since I was 7 years old and just this year got told I could be a candidate for surgery. I have...
Hackers, pacemakers and VNS devices

12/2016 | 0 Comments

An article was posted about the security of pacemakers and their vulnerability to hackers. (See link below.) https://www.tripwire.com/state-of...
Gamma Knife

11/2016 | 3 Comments

Has anyone here had gamma knife done for mesial temporal sclerosis? I've read that there have been studies on it, but can't find where it can be done...
Meg scan

10/2016 | 1 Comments

I had the left temporal lobectomy about 20 years ago. They removed my left temporal lobe and hippocampus minus a small area and speech part of my...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.