Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

After surgery on left temporal lobe

02/2016 | 0 Comments

Hello all. I am currently at 1 year and 2 days since brain surgery. This was a long year of medicine experiments to cure epilepsy. Until Dec 7th I was...
RNS-Regal Nerve Stimulator

02/2016 | 1 Comments

Has anyone here tried the RNS? My neurologist is recommending the RNS, not the VNS. He believes it is more effective but, it seems like a new machine...
SmartWatch or Embrace

02/2016 | 21 Comments

Hello, I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences...
VNS (vagus nerve stimulation)

01/2016 | 1 Comments

Has anyone had any experience with VNS therapy for seizures ? I'm considering having it done, but would like to know more. Any info would be...
Video EEG/Right Temporal Lobe Resection?

12/2015 | 5 Comments

Hi everyone, I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after...
right temporal lobectomy

12/2015 | 1 Comments

I had a right temporal lobectomy performed at the Cleveland Clinic in 2013. Has anyone had surgery from that amazing place?
I would like surgery

12/2015 | 1 Comments

I am 36 and live in NZ. I have had epilepsy for about 15 years and have been on 6 of different meds over that period with many "cocktail" combinations...
Surgery and Devices

11/2015 | 0 Comments

Has anyone had temporal lobe surgery at kaiser in Redwood a City? If yes, how did it go?
Surgery and Devices

11/2015 | 0 Comments

Has anyone had temporal lobe surgery at Kaiser in Redwood City, CA. If so, could you share your experience? Thanks!
Temporal lobectomy. Should I go for it?

11/2015 | 0 Comments

I've had epilepsy since 2007. It appeared totally out of the blue with no obvious cause. I was married, had a young son, a career and living a really...
VNS with Younger Children

10/2015 | 1 Comments

Hi everyone. I'm new to the site and wanted to get some advice from any parents that have had VNS done for a younger child. My daughter is 6 and has...
Best place to have epilepsy surgery

10/2015 | 6 Comments

Hi, I have struggled with epilepsy since a teen and thinking of taking the leap to epilepsy surgery at my doctor's urging. Where are the best places...
Temporal Lobectomy and continued seizures

09/2015 | 0 Comments

I have had seizures since I was 13 and didn't know that's what they were and thought it was something weird I did. It was a dejavue, gastric rising...

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