Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Teens Speak Up!

A place for Teens Speak Up! alumni and parents to share their stories and stay connected. 

Just Diagnosed at 18

05/2019 | 5 Comments

Heya My name's Emma and I had my first ever seizure (tonic-clonic) last September at TAFE (a type of practical college in Australia). Since then i've...
Help educate more people

11/2018 | 0 Comments

I want to educate more people about Epilepsy and tell them my story but I don't know where to start, how can I educate more people about Epilepsy?
Who else has the same feelings as me

11/2018 | 1 Comments

This is how I feel with Epilepsy (Seizures) in my life!!!!!!!!!!! Alone Sad Not Normal A Freak A loser Depressed A baby (because there people who...
Teens speak up

09/2018 | 2 Comments

Hi so basically I am having these cluster seziures. For anyone who does not know it means I am having 5+ seziures in 2-3 hours. This is causing me to...
my story

05/2018 | 0 Comments

2 years ago I was diagnosed with cancer, 1 year ago insomnia put me in the hospital for 25 days, 2 days ago I was diagnosed with epilepsy after almost...
My story

04/2018 | 2 Comments

Hello my name is Nicole, I'm from Ecuador I'm 16 years old, since I was 6 years old I have suffered from this disease. It's a little hard to me...
4 seziures in one day!

03/2018 | 1 Comments

Hi so this is a bit complicated so I’m going to try and sum it up. One day I took all my seziure medications (like always) but then I had a small...
Epilepsy since Birth

09/2017 | 2 Comments

Hello my name isAllison I was diagnosed with epilepsy at birth but I did not have any seziures (other than little staring ones as a baby) until I was...
I don't know what to do anymore...

07/2017 | 6 Comments

Hey to anyone who actually reads this, I'm Aleisha, I'm 16 and in Grade 12. I have a million things wrong with me. They have been trying to figure out...
Weird Abnormalities

03/2017 | 1 Comments

Hello Everyone As of the last month, I have been experiencing odd symptoms that I think may be a brain lesion. I have little to no appetite I have...
is this a seizure?

08/2016 | 1 Comments

hello everyone, I'm not really sure how to begin this because I'm so confused. but let me try and sum it up without sounding too confusing. the first...
Epilepsy and Dream Job

06/2016 | 1 Comments

Hi guys, I am 18 years old and have controlled epilepsy and have been seizure free for a year by taking medication. Unfortunately, just having this...
Teen Problems

09/2015 | 2 Comments

Hi,discuss your problems here.This group is for teens only.
Making A Difference

04/2015 | 2 Comments

Hey everyone I just recently started a campaign called Making A Difference focused on topics such as bullying self-acceptance mental health issues...

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