VNS

HI

I have a VNS as well

I got mine on sept 20 of 07 and it got replaced on august 25th of 10.

I was having 10-12 szs a day almost every day and I was slipping downhill s little every day.

I was not a candidate for brain surgery so they putrt in a VNS instead.  I had very bizarre behaiour as a child and they all said it was a behaiour problem when it wasnlt.  it was Complex Partial szs that were untreated and never caught.

I walked around with them like that thru grade school, middle school, HS and part of college.

I had a car accident a hhit a tree head on and that may have brought out my epilepsy even more.  No one knows if I had a inknown sz that did that or that I juat blacked out.

I totladel the car and my self.  I hade a ship-lash, a head injury, and a broke ankle and coller bone amonomg other things.

I had a bracelet on but the failed to look at it or they would have know that I have epilepsy.  I was put in to the neurology observation uit for a few days.

I just had my settings changed.  I used to have it 5 minutes OFF and 20 secondsON.

Now it is at 1.8 minutes OFF and 21 seconds ON.

I swipe wiith my magnet when I feel one coming on or and aura.  but sometimes I miss and my husband will have to do it.  I live on O'ahu so I do not get back to PHX to see my mom very often.

I stared repsoningtp it with in 2 months.

how about you tell me your story.

Nancy