Community Forum Archive
VNS
Topic: Family & Friends
I was just curious to find out if anyone had this installed, and their results. I was diagnosed with petit mal seizures when I was 16 years old. I am 24 now and have been on a handful of medications throughout this time. Due to the fact that there are several abnormalities in my brain surgery is out of the question. Any info would be much appreciated.
I got the vns in 2018, I
Submitted by gek on Mon, 2020-02-17 - 06:33
I got the vns in 2018, I spent a hell of a year where I could't stand it. I asked my doctor to turn it off, then in november 2019 I gave it another go. We changed the settings, now I tolerate a bit more, it still give me sometimes discomfort, especially when doing sport, but I am extremely resistant to medicine, I tried everything, I am currently on 5 medications and also at very high dosage, vns was my "last chance", I had to give it a try. Hopefully with time I'll be able to reduce a bit the dosage. I'll see... (this is MY experience, don't take it as everyone with vns had my same experience, we are all different!)