Community Forum Archive

Feeling seizure activity when Tired

Sun, 04/26/2020 - 09:11
Hello everyone. I am just curious. I have JME juvenile Myoclonic Epilepsy and I struggle a lot in the mornings if I have to wake up early. I feel a lot of seizure activity and if I don’t have a lot of sleep I feel REALLY sick. Does anyone else feel this ? It really hinders my ability to work a regular job. What can I do ?

Comments

Hi, Thank you for posting. It

Submitted by Anonymous on Mon, 2020-04-27 - 09:04
Hi, Thank you for posting. It’s important that you're discussing your concerns with your healthcare team and if you experience any changes in seizure types/frequency, side effects, symptoms, moods or behaviors, to help determine what individual treatment plan may be best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. You may want to consider seeing avocational rehabilitation counselor to help you navigate your career, https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/vocational-rehabilitation-counselors and in many communities the local Epilepsy Foundation: https://www.epilepsy.com/affiliates offers programs and resources to help connect you with vocational counselors.  Explore the employment section of our website, to help manage the impact of epilepsy on your work: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know . For many individuals with living with JME the most frequently reported causes of seizures  are lack of sleep and stress. https://www.epilepsy.com/learn/types-epilepsy-syndromes/juvenile-myoclonic-epilepsy If you're having difficulties managing stress or getting enough good quality sleep, it's important that you’re discussing these challenges with your healthcare team as well. For additional stress management technique & tips to help you practice healthy bedtime routine, visit: https://www.epilepsy.com/living-epilepsy/healthy-living .  It may be helpful to keep a journal or a diary to help keep track of your seizures & triggers.This can help you and your healthcare team detect potential patterns, allowing you to modify your behavior and lifestyle, as appropriate. In addition to identifying your triggers, documenting how your feeling in detail, will be very helpful to review with your doctors. My Seizure Diary can be used to organize your health issues, manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline

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