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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Meds or no meds?

Thu, 05/28/2020 - 19:21
I'm wondering how many of you went off your meds while you were pregnant? I have been seizure free for 10 years but I've also been on meds this whole time and my neurologist has said that the meds I'm on( lamotrigine) is one of the safest for pregnancy. I really don't want to go off my meds when I become pregnant as I'm worried how I will react with no meds. Have any of you still taken your mds while pregnant and had a healthy baby and delivery?


 Hi, Thank you for posting.

Submitted by Anonymous on Fri, 2020-05-29 - 09:20
 Hi, Thank you for posting. Congratulations on being seizure free for 10 years, that’s wonderful news and we wish you many years of seizure freedom ahead! It’s important that you are taking the time to plan ahead for and your family. It’s also important to have a healthcare team, including your neurology/epilepsy team and OBGYN, that are willing to work together with you - before, during and after the pregnancy. An Epilepsy specialist, (Epileptologist) can also follow you during pregnancy and make sure you are on the best medication for you. Treatment and how the body may react to taking or stopping certain medications varies for each individual. A decision about whether to stop taking seizure medicines or making additional changes to treatment plans, should only be made after consultation with your healthcare team, who can help evaluate individual risks. . For additional information about epilepsy, medications, pregnancy and things to review with your healthcare team, please visit: .You may also want to consider using a journal or a diary like My Seizure Diary, which can help you organize your health records, track seizures, managing medications,and more, which can be shared with your healthcare team.  Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, [email protected]. , or contact your local Epilepsy Foundation:

Hi. Congratulations on being

Submitted by Patriotrehab on Sat, 2020-05-30 - 20:50
Hi. Congratulations on being seizure free for 10 years! Someone else actually shared a positive story in April on the Women with Epilepsy Topic, and she titled it Epilepsy & Pregnancy. She continued taking her lamotrigine, had a couple of seizures, but had a healthy baby. You should scroll down a bit and read and maybe even reply to her post to see if she’d be willing to share any more with you. Also, follow the advice that ConnectHelp provided for you. I am a person with epilepsy, but my epilepsy started as a result of medical negligence while pregnant with my only child twenty years ago and so, I’m not the right person to talk to about this topic. I do wish you well though. 

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