Community Forum Archive

 Hi, Thank you for posting. Congratulations on being seizure free for 10 years, that’s wonderful news and we wish you many years of seizure freedom ahead! It’s important that you are taking the time to plan ahead for and your family. It’s also important to have a healthcare team, including your neurology/epilepsy team and OBGYN, that are willing to work together with you - before, during and after the pregnancy. An Epilepsy specialist, (Epileptologist) can also follow you during pregnancy and make sure you are on the best medication for you. https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist. Treatment and how the body may react to taking or stopping certain medications varies for each individual. A decision about whether to stop taking seizure medicines or making additional changes to treatment plans, should only be made after consultation with your healthcare team, who can help evaluate individual risks. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/stopping-medication . For additional information about epilepsy, medications, pregnancy and things to review with your healthcare team, please visit: https://www.epilepsy.com/living-epilepsy/women/epilepsy-and-pregnancy .You may also want to consider using a journal or a diary like My Seizure Diary, which can help you organize your health records, track seizures, managing medications,and more, which can be shared with your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary  Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

Hi. Congratulations on being seizure free for 10 years! Someone else actually shared a positive story in April on the Women with Epilepsy Topic, and she titled it Epilepsy & Pregnancy. She continued taking her lamotrigine, had a couple of seizures, but had a healthy baby. You should scroll down a bit and read and maybe even reply to her post to see if she’d be willing to share any more with you. Also, follow the advice that ConnectHelp provided for you. I am a person with epilepsy, but my epilepsy started as a result of medical negligence while pregnant with my only child twenty years ago and so, I’m not the right person to talk to about this topic. I do wish you well though.