Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Women With Epilepsy

Catamenial seizures--getting worse?

02/2020 | 2 Comments

I've had epilepsy for more than 20 years--simple partial, pretty controlled w meds. In the past 2 years, I've started having more seizures around my...
Frustrating

01/2020 | 3 Comments

So, I’m new to this support group, posting in forums, really even reading them thing. I’m typically a very private person but I have no one to talk to...
Triggers

12/2019 | 2 Comments

I have been on a new medication for ALMOST two years. I was doing great, the last episode was 12/11/2017. I suffered one "blackout" yesterday. I was...
Switching from Keppra to Vimpat

11/2019 | 1 Comments

My neurologist is switching me from Keppra to Vimpat. I had problems sleeping on keppra and my anxiety was worse than ever. Im so terrified of...
Feel Like Two Different People???

11/2019 | 4 Comments

Short BIO: Been Dealing with Epilepsy for 22 years. Began when I was 20 and pregnant with my Son was misdiagnosed as just panic attacks. I had a...
epilepsy meds while pregnant

10/2019 | 1 Comments

I am 34 considering having a baby. I have had epilepsy since about 6yrs old from being a clumsy kid smacking my head into a metal bleacher when i fell...
Pregnancy & Epilepsy

09/2019 | 1 Comments

Hi everyone! I was diagnosed with JME about 7 years ago and only ever had one Grand Mal seizure but just recently found out I’m still having seizure...
Working Full Time and Being a Mom

09/2019 | 1 Comments

I was diagnosed with JME around 10 years old and have it well under control. My neurologist and I found a medication/sleep schedule/lifestyle that...
Constant Auras. Anyone have this?

09/2019 | 3 Comments

The past few years, I have days when I have constant auras. It is hard to tell when one ends and the other begins. They seem to run right into each...
I had epilepsy as a baby

09/2019 | 1 Comments

when I was a baby I had a tumor in my left temporal lobe of my brain that caused me to have epilepsy and when I was 7 I had surgery to stop my...
my history with epilepsy

09/2019 | 0 Comments

Hi my name is Kayla. When I was a baby I had a brain tumor in my left temporal lobe of my brain that caused me to have epilepsy when I was around two...
Help diagnose me

09/2019 | 2 Comments

Hi all, I was wondering if any of you share the same experience/ symptoms as me. So far I have not been able to figure out what is happening to me. So...
I am waiting for a good result

09/2019 | 1 Comments

I am pregnant in the fourth month. Pregnancy was not planned, but it turned out something like this ... I constantly take pills that the doctor wrote...
Lamictal and nursing

08/2019 | 3 Comments

Is taking lamictal considered safe while nursing? Does anyone know of any recent findings?
Valproic Acid, Pregnancy, and Babies

08/2019 | 2 Comments

Hi everyone, I'm new here. Writing this post to gain some insight since cases like this is quite uncommon in my country. Anyone here please do share...
Tired of Twitching

08/2019 | 2 Comments

I've had epilepsy since I was 11--I'm 21 now. Doctors never could figure out what kind of epilepsy I have, specifically, because I don't respond to...
New symptoms

08/2019 | 3 Comments

Hi I'm new, first post. I'm 35 and have had seizures most of my life (partial complex) but I've noticed since I've gotten older I'm getting new...
Consent

07/2019 | 2 Comments

Hello, I am new to this forum and haven't posted before. But I am in desperate need of help from people who understand. This is a very personal and...
Seizures and UTI

07/2019 | 1 Comments

I'm 30 and I was diagnosed with epilepsy about 6months ago...a little back story...I had encephalitis when I was about 8, grand mal seizure, life...

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