Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Newly diagnosed, auras? Need advice.

Mon, 10/28/2013 - 22:12
I am 29 years old and had my first grand mal seizure in May of this year, before my seizure I had "spells" where I would feel odd get very warm and nauseated, and they would go away. Sometime I will get an odd smell or taste in my mouth. I had these spells before I had a seizure and now that I have been diagnosed with a seizure disorder and am taking Keppra 500 mg twice a day I continue to have these spells randomly. Wondering if I should consider these Auras? If I am still having them should I talk to my neurologist about uping my dosage. Thanks for reading!

Comments

Re: Newly diagnosed, auras? Need advice.

Submitted by just_joe on Tue, 2013-10-29 - 10:01

Jennay

By all means yes talk to youe neuro because you have a large range of dosages and even meds that will work with the keppra

It is highly possiable that those are auras. Auras are basically seizures in themselves. I had wierd feelings fro time to time. I wa also being written up for day dreaming when the testing showed I was among the highest in class. Those day dreams were absence seizures,SO yes what you have been experiancing are or could be auras.

The questions to ask now are How long have you been on keppra and when was the last time your dosage was increased. I am currently on keppra but I take 750 3 twice daily which is maximum dosage. I was still having more seizures and Doc was informed by the drug company that vimpat could work with the keppra and Doc added it the number of seizures has been reduced. Both Keppra and vimpat are made by UCB .

I would suggest you get the My Epilipsy Diary near the top of this page and use it. Write down anything that is different or a litte weird, listen to what you can do and use it because it can be sent to your doc or even printed.

Hope yu get the answers you need and get your seizures controlled

Joe

Jennay

By all means yes talk to youe neuro because you have a large range of dosages and even meds that will work with the keppra

It is highly possiable that those are auras. Auras are basically seizures in themselves. I had wierd feelings fro time to time. I wa also being written up for day dreaming when the testing showed I was among the highest in class. Those day dreams were absence seizures,SO yes what you have been experiancing are or could be auras.

The questions to ask now are How long have you been on keppra and when was the last time your dosage was increased. I am currently on keppra but I take 750 3 twice daily which is maximum dosage. I was still having more seizures and Doc was informed by the drug company that vimpat could work with the keppra and Doc added it the number of seizures has been reduced. Both Keppra and vimpat are made by UCB .

I would suggest you get the My Epilipsy Diary near the top of this page and use it. Write down anything that is different or a litte weird, listen to what you can do and use it because it can be sent to your doc or even printed.

Hope yu get the answers you need and get your seizures controlled

Joe

Re: Newly diagnosed, auras? Need advice.

Submitted by JennayB on Tue, 2013-10-29 - 10:22
Thanks for responding Joe, I have been on Keppra since the end of June. I haven't had a dosage increase at all because I knew it was going to take time for me to get used to the medication. Plus only have seen the Neuro twice now. Plan on calling him this week to discuss possible dosage increase.

Re: Newly diagnosed, auras? Need advice.

Submitted by just_joe on Tue, 2013-10-29 - 17:34

Good

Keppra is one of the best medications I hve used and I have used AED' for 50+ years

Keppra has not only reduced the number of seizures I was having. It also reduced the time in the seizure and the time to focus (get back to normal). There are other medications that can be coupled with keppra which can also help.

Discuss an increase. I know it takes time to get used to meds but I also know that dosages can be increased and people can be seizure free. I was for over 3 years

I have been a very lucky person because I have been connected to the same group of neurologists since 1970. One woud retire I got his replacement he specialized and introduced me to the next who retired and introduced me to the next and the one I have now had seen my files periodically when one was away and I had questions. But Doc is great and we have had a good relationship.

Did I suggest you get the My Epilepsy Diary which is near the top of the page? If not go look at it and watch what can be done with it. All the information that is put in it can and will be helpful to your neuro. If he uses the information he can see possiable triggers see other prcedures or medications that might help get yu seizure free

Good luck with the call

Joe

Good

Keppra is one of the best medications I hve used and I have used AED' for 50+ years

Keppra has not only reduced the number of seizures I was having. It also reduced the time in the seizure and the time to focus (get back to normal). There are other medications that can be coupled with keppra which can also help.

Discuss an increase. I know it takes time to get used to meds but I also know that dosages can be increased and people can be seizure free. I was for over 3 years

I have been a very lucky person because I have been connected to the same group of neurologists since 1970. One woud retire I got his replacement he specialized and introduced me to the next who retired and introduced me to the next and the one I have now had seen my files periodically when one was away and I had questions. But Doc is great and we have had a good relationship.

Did I suggest you get the My Epilepsy Diary which is near the top of the page? If not go look at it and watch what can be done with it. All the information that is put in it can and will be helpful to your neuro. If he uses the information he can see possiable triggers see other prcedures or medications that might help get yu seizure free

Good luck with the call

Joe

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.