Side effects

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I am currently on Onfi, Clobazam, and Lamictrogine. I have been dealing with this for years now. I have tried multiple other medications but I still have the same results. This combination has been working for me for the most part. However, I am constantly tired, stressed, lazy, and have a lower self esteem. I haven't had any response from my doctor about it so I don't know if it is the medications. It is affecting my work intensively. I can't get myself to work out or really concentrate on anything for more than a few minutes to occupy my mind. I really hate discussing my issues with people and can't afford to go to any doctors or therapy or try any more medications (my current prescriptions are eating my paychecks up as it is). Does anybody have any kind of advice? This seriously needs to stop. I'm sick of it. I do smoke marijuana, which greatly counteracts the symptoms, especially those such as intense nausea. I just can't think of what else to do. Thanks.

Comments

Hi, Thank you for posting, we

Submitted by Anonymous on Wed, 2019-11-20 - 08:59

Hi, Thank you for posting, we understand this can be a very frustrating and expensive process. It’s important to remember that you are not alone, and we do have resources available that can help. For more information regarding our patient assistance programs please visit: https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance or contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. Treatment and how your body will react to certain medications varies for each individual. To learn more about medications you take, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsThe effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications: https://www.epilepsy.com/learn/triggers-seizures/drug-abuse It’s important that you discuss this further with your healthcare team to review how marijuana use may affect your individual treatment plans and if you continue to experience changes sides effects in seizure types/frequency, behaviors & symptoms. Be open and honest with your doctor about side effects and how they affect your health and daily life. If you can’t talk openly with your team, or you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions or assistance finding a specialist near you, please visit : https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about resources that are available & when help is needed. Additionally, you may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording your medical history, managing medication & other therapies, recognizing triggers, side effects, behaviors and other health events, which can be shared with your healthcare team. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community

Hi, Thank you for posting, we understand this can be a very frustrating and expensive process. It’s important to remember that you are not alone, and we do have resources available that can help. For more information regarding our patient assistance programs please visit: https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance or contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. Treatment and how your body will react to certain medications varies for each individual. To learn more about medications you take, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsThe effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications: https://www.epilepsy.com/learn/triggers-seizures/drug-abuse                                                                                         It’s important that you discuss this further with your healthcare team to review how marijuana use may affect your individual treatment plans and if you continue to experience changes sides effects in seizure types/frequency, behaviors & symptoms. Be open and honest with your doctor about side effects and how they affect your health and daily life. If you can’t talk openly with your team, or you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions or assistance finding a specialist near you, please visit : https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about resources that are available & when help is needed. Additionally, you may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording your medical history, managing medication & other therapies, recognizing triggers, side effects, behaviors and other health events, which can be shared with your healthcare team. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community           

Hi, Thank you for posting, we understand this can be a very frustrating and expensive process. It’s important to remember that you are not alone, and we do have resources available that can help. For more information regarding our patient assistance programs please visit: https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance or contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. Treatment and how your body will react to certain medications varies for each individual. To learn more about medications you take, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsThe effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications: https://www.epilepsy.com/learn/triggers-seizures/drug-abuse It’s important that you discuss this further with your healthcare team to review how marijuana use may affect your individual treatment plans and if you continue to experience changes sides effects in seizure types/frequency, behaviors & symptoms. Be open and honest with your doctor about side effects and how they affect your health and daily life. If you can’t talk openly with your team, or you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions or assistance finding a specialist near you, please visit : https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about resources that are available & when help is needed. Additionally, you may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording your medical history, managing medication & other therapies, recognizing triggers, side effects, behaviors and other health events, which can be shared with your healthcare team. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community

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