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Brain surgery

Sun, 08/28/2005 - 23:51

 Im kinda new to this site. My name is michael, Im from SC, and just recently back in April had a temperal lobatomy. Well so far so good. Im doing great just like the doctor ordered. I havent had the first aura or anything. And I was having them weekly. ( knock on wood) Well anyways id like to describe my auras and seizures because my nueroligist seem to think im crazy when I talk about them. They know of the deja vu but when I desrcibe them, well anyways here goes. This may sound kinda strange but i figured yall may feel me a little since your kinda going through what I have. When I was about 10 or 11 I was getting ready for school and as I was walking to the bathroom to brush my teeth ( i remember this as if it were yesterday) I looked at the door, and up in the road I saw somthing I believed to have horns on it's head. This is nothing made up and the honest truth, I dont remember what happened after that moment. Ever since then I get a feeling what a feel as my aura and it's deja vu, and it makes me sick and I end up throwing up and have been doing this since shortly after that happened. And after that I would always get a bad migrane and go to bed. Well since then the age 10 to about 15 I always thought those were just weird feeling I had and I couldnt hardly describe them to my doctor and he just said of thats normal and nothing came about it. Well when i was about 15 I did that at school and came home sick with those deja vu feelings, throwing up, got a migraine, and went to sleep. Next thing I knew my mom got home woke me up I was laying in the bed with a black eye, blood all over the floor from the bathroom to her bed and I didnt remember it at all. We just thought I fell throwing up and passed out and got up sick and didnt know it. All the same stuff happened for another year and my mom got sick with ALS and i was taking care of her myself at 16. I had another feeling of Deja vu threw up got in bed with her with a migraine and fell off her bed and hit my head on her bi-pap. Thats when i had my first noticable seizure, and broke my collarbone. I went into the ER and came out that night and started seeing a neuroligist. But no one new of the seizure, I was seeing the neuroligist for migraines. I went to see her and was put on Topamax for migranes and to get a little weight off. And about a 3 months later I was there to see here again for seizures. Anyways to make a long story short, the meds never helped me, and I told I needed to be tested to see if i was a candidate for surgery. So i was tested, pyscology, WADA, all that, I passed them both. Then they set a date for April 14, 05. Thats when i went in for the first part where they put an EEG in on my temperal lobe to kinda pinpoint the exact location of the scar tissue b/c they were a little concerned with memory loss. They needed to see 10 seizures with that in. I had tons, they left it in for ten days, removed it on the 24th and did the 2nd surgery where they removed the scar and I went home about 5 days later. I havent had the first feeling of deja vu yet( knock knock) and im so glad I went to these Docs and would suggest it to anyone to come here to him. Im going up here now talking to kids in the hospital and there familys trying to wish them luck, and talk to then and answere any questions I can. I feel like a new person now. But I steel feel like any moment I could have one and pray that I dont. Just A few Questions, Has anyone had the surgery, and this far afterwards not had any signs and later had them?  How long? Were they worse? In a new area?  Any suggestions? Please if anything or any question Mged1@comcast.net     

                                                               thanks to everyone

                                                               Michael Geddings

 

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