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Complications from surgery for epilepsy

Fri, 01/11/2008 - 08:08
Hi, I had surgery for epilepsy September 2006. I am now having problems with the nerve repaire emotionaly and physicaly and I want to know if anybody else is going threw this or has gone threw this. It would be nice to hear from others to know how to deal with it and someone who understands.

Comments

post surgery problems

Submitted by ScottR on Fri, 2008-01-11 - 12:20

 Hello tereasa is it the nerve endings that allow you to feel something on your scalp or other nerves that your refering too?

If its the ones that permit you to feel something on your scalp you should have had short sharp shots of pain while the nerve endings were regrowing, and within the 1st few weeks after surgery you should have begun to loose the leathery feeling on your scalp and begun to have normal feeling back.

I had surgery on 11/12/2007 and my scalp is almost tottaly back no normal.

Take care, Scott

 Hello tereasa is it the nerve endings that allow you to feel something on your scalp or other nerves that your refering too?

If its the ones that permit you to feel something on your scalp you should have had short sharp shots of pain while the nerve endings were regrowing, and within the 1st few weeks after surgery you should have begun to loose the leathery feeling on your scalp and begun to have normal feeling back.

I had surgery on 11/12/2007 and my scalp is almost tottaly back no normal.

Take care, Scott

nerve repaire

Submitted by Tereasa on Sat, 2008-01-12 - 07:46
Tere  I felt just like you. I was soooo happy. I was told at Mayo by my Dr. that nerve repaire can take up to 2 years to repaire.  I thought about how lucky I am to not have any bad side effects. Then a year later I started having the bad side effects. I hope you don't go threw this.

Re: nerve repaire

Submitted by queeniw on Tue, 2008-01-29 - 08:15

To anyone who has gone through surgery or is considering it - I didn't have the final brain surgery but did go through the surgery of having the electrodes planted in my brain for mapping.  I was so excited to have the surgery and be done with these seizures.  But the electrodes caused 2 strokes.  All that has happened to me since causes me to never concider brain surgery.  I am so happy for anyone who has gone through it and it worked!!  For any of the others, just remember to ask your doctor MANY questions - he isn't going to tell you everything.  Infact when I asked my doctor if he thought I would have a stroke, his answer was no.  Then he continued with "the next surgery is more serious and I will explain more about it later".  If the following surgery could even have more serious results I would have to be crazy to go through with it.  But I do understand that everyone is different - so do what ever you feel is the best for you!  Just remember to ask alot of questions!!!!!

   Mar

To anyone who has gone through surgery or is considering it - I didn't have the final brain surgery but did go through the surgery of having the electrodes planted in my brain for mapping.  I was so excited to have the surgery and be done with these seizures.  But the electrodes caused 2 strokes.  All that has happened to me since causes me to never concider brain surgery.  I am so happy for anyone who has gone through it and it worked!!  For any of the others, just remember to ask your doctor MANY questions - he isn't going to tell you everything.  Infact when I asked my doctor if he thought I would have a stroke, his answer was no.  Then he continued with "the next surgery is more serious and I will explain more about it later".  If the following surgery could even have more serious results I would have to be crazy to go through with it.  But I do understand that everyone is different - so do what ever you feel is the best for you!  Just remember to ask alot of questions!!!!!

   Mar

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