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Considering Surgery

Tue, 02/01/2005 - 13:46
Topic: Surgery and Devices
 

I have recently been diagnosed with temporal lobe epilepsy.  I have had these "spells" for about 3 years and never in a million years would I have imagined epilepsy!  When I would have the spells it was a "de ja vu" feeling just likemany others have explained!  I was started on Dilantin and then switched to Trileptal and then my doc added Keppra.  I have looked into different treatment options for this and I am really considering have a temporal lobectomy.  I will be traveling to Cleveland this Monday (31) for a consultation.  Any advice or previous experiences with this type of surgery?  Also I am experiencing MAJOR memory problems!!  I cant remember hardly anything anymore!  It's awful!   I have to write everything down, and then I usually forget where i put the note!  haha  but seriously,... my memory is really bummin me out, especially when I have a 5 year old daughter!!

Any advice appreciated!!

April

Comments

RE: Considering Surgery

Submitted by jennamay on Thu, 2005-01-27 - 09:11

Hi April--

 

Here are a few links about surgery as well as memory you may find helpful:

http://www.epilepsy.com/epilepsy/surgery.html

http://www.epilepsy.com/epilepsy/types_surgery.html

http://www.epilepsy.com/epilepsy/surgery_candidate.html

http://www.epilepsy.com/epilepsy/surgery_preassessment.html

http://www.epilepsy.com/epilepsy/surgery_expectations.html

http://www.epilepsy.com/epilepsy/surgery_results.html

http://www.epilepsy.com/articles/ar_1063660975.html

http://www.epilepsy.com/articles/ar_1063660416.html

http://www.epilepsy.com/articles/ar_1063659813.html

http://www.epilepsy.com/articles/ar_1090869265.html

http://www.epilepsy.com/epilepsy/surgery_brainmap.html

http://www.epilepsy.com/stories/ps_1064251031.html

 

Best Wishes,

Epilepsy.com Editor

RE: Considering Surgery

Submitted by batman on Fri, 2005-01-28 - 14:33

April,

There might be a chance of the meds that you're taking are what's giving you memeory problems. When I was taking lamictal and dilantin and the same time for over two years, my memeory was down and "out-to-lunch", plus the cps increased greatly. My epi found that the problem was that one med was knocking down the potency of the other. One of the meds was quickly switched and over the next 18 months the cps's stopped completly.

I just found something a few weeks ago, dealing with a person's diet. With it and what I've read over, I'm now going to give it a try. It should help with several other health situations I may not know about.

Here's the website where I found the information... http://www.edgarcayce.org/health/overview_treatmentplan.html Check which every ones you'd like too, but please make sure that you click on and check over the one for epilepsy.

Bruce J

April,

There might be a chance of the meds that you're taking are what's giving you memeory problems. When I was taking lamictal and dilantin and the same time for over two years, my memeory was down and "out-to-lunch", plus the cps increased greatly. My epi found that the problem was that one med was knocking down the potency of the other. One of the meds was quickly switched and over the next 18 months the cps's stopped completly.

I just found something a few weeks ago, dealing with a person's diet. With it and what I've read over, I'm now going to give it a try. It should help with several other health situations I may not know about.

Here's the website where I found the information... http://www.edgarcayce.org/health/overview_treatmentplan.html Check which every ones you'd like too, but please make sure that you click on and check over the one for epilepsy.

Bruce J

RE: Considering Surgery

Submitted by bkarma on Sat, 2005-01-29 - 10:27

Aprilmay,

 

I had it done just over six months ago and I haven't had a seizure for over four months now.I think it's still too early to know for sure if it was worth it. Keep in mind that I have (or did) full T/C siezures. It was an ordeal to be sure; but well worth it if I stay siezure free, medicated or not. If I only had Partial Complex siezures I don't know if I'd go for it and for that matter I doubt the doctors will. As for memory, the meds can affect you. I've not used Trileptal or Keppra but they had me on Topamax for a while and I couldn't concentrate at all. Later I heard some call it the "stupid drug" I'm not surprised. Good luck - John

Aprilmay,

 

I had it done just over six months ago and I haven't had a seizure for over four months now.I think it's still too early to know for sure if it was worth it. Keep in mind that I have (or did) full T/C siezures. It was an ordeal to be sure; but well worth it if I stay siezure free, medicated or not. If I only had Partial Complex siezures I don't know if I'd go for it and for that matter I doubt the doctors will. As for memory, the meds can affect you. I've not used Trileptal or Keppra but they had me on Topamax for a while and I couldn't concentrate at all. Later I heard some call it the "stupid drug" I'm not surprised. Good luck - John

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