Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

I need your help

Thu, 06/28/2007 - 12:12
I am a student at the Medical University of South Carolina, and have been living with epilepsy since I was eight. I decided to make epilepsy a focus of a study, and hopefully I can use the members of this forum as my sample. This means I need as many responses as I can get! There is, unfortunately, no reward, but all you need to do is answer a few questions. When I'm done, I'll post the results. Hopefully it will be useful to everyone as a collection of opinions from people on this website, who not only live with epilepsy but share with each other their experiences and support each other in a way that people without epilepsy can not. If you do not wish to respond publicly to these questions, you can email them to me at donohuee@musc.edu. Thank you! Evan 1. What is your username? 2. How old are you and how long have you been living with epilepsy? 3. How has epilepsy impacted your life? 4. In which ways have you been treated? (This implies meds, surgery, VNS, diet, etc.) 5. Explain the effectiveness as well as adverse reactions of each treatment method, including each medication. 6. Choose the best and worse treatment option, in terms of seizure control and side effects, you have experienced, and include why. Thanks again!

Comments

Re: I need your help

Submitted by ScottR on Thu, 2007-06-28 - 16:47
1. scottR 2. a. 36 years old b. 23 years total 3. a. seizures b. headaches c. difficulties in career advancement d. forced to get more sleep which takes away from family time and time to get things accomplished outside of work e. the financial expense of testing and medications. f. The possibility of surgery and the time I will have to take off work to properly recover. g. Transportation difficulties and the strain that it puts on my entire family 4. at this time my only course of treatment has been threw medication however if all goes well I will probably have surgery in January 5. a. The medication has been fairly effective over time however the older I get the more the dosage slowly increases. b. The only real adverse reaction that I can tell you about at this time is the fact that the medication does make you drowsy. 6. The only treatment option I have tried at this point in time is medication. Good luck with your study. I hope this helps. Sincerely; Scott Rogers.

Re: Re: I need your help

Submitted by rubbersoul on Thu, 2007-06-28 - 17:37
Scott, thank you so much. I hope everything goes well for you and I'll post my results in about a month. Thanks again, Evan

Re: I need your help

Submitted by rubbersoul on Wed, 2007-07-11 - 11:55
Thanks everyone who has helped so far! I need a lot more participation to come up with anything definitive. Thanks again!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.