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Is it Time for Surgery??
Wed, 08/15/2007 - 23:24Topic: Surgery and Devices
Today I went to the Dr. for a Check up. I am a 28 Year old Female and I have been having Seizures for 10 Years now, and been diagnosed with E, for 2, as a result of a Car accident. I have been on a lot of different medication combinations and nothing seems to completely control my seizures. I still seem to manage to have about 5 or so Breakthrough seizures a month. (Complex Partial). Well I have also been dealing with the ongoing Weight Battle. Up and down..I have gained 16 pounds in 3 months, and I would not say that I am over eating at all.
Well today he told me that in order to control the weight and the seizures the option would be Surgery. A Right Temperal Lobe Lobectomy. How have other people dealt with the surgery issue? Was it a good choice and how did you know it was the right choice for you?
Comments
Re: Is it Time for Surgery??
Submitted by RTL on Fri, 2007-08-17 - 21:29
I had this surgery 4-1/2 years ago. How I made the decision and how it all turned out is detailed below:
http://users.eastlink.ca/~kehoe/
Kevin
Re: Re: Is it Time for Surgery??
Submitted by ouize on Sat, 2007-08-18 - 01:10
*hugss* Thank you Kevin. I read your entire site and it was wonderful. I am in the investigation portion for the surgery, i've done the video eeg bit, and have to go back in for the invasive bit in september. I also having partial complex seizures only diagnosed 10 months ago however been having them for roughly 5-6 years, just getting worse every time.
Anyways, THANK YOU again, it was uplifting, and very informative.
Re: Is it Time for Surgery??
Submitted by chumtochatwith2 on Fri, 2007-08-17 - 08:11
Hello there, I had a left temporal lobectomy in Sept of 2006. I was having up to four and five seizures a day which were musicogenic meaning that music was my trigger. I too tried many many medications with no success. I am so pleased with the results because I have been seizure free since. Work with your doctors and see where it takes you. I haven't had any side effects whatsoever. They were concerned about short term memory and speech for me. Well, I am back in school and scoring high nineties so I am fine. I have absolutely no regrets. Good luck and feel free to ask if you have anymore questions. Chumtochatwith