Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Left Temporal Lobe
Tue, 10/02/2007 - 13:16Comments
Re: Left Temporal Lobe
Submitted by morahtrish on Sun, 2008-05-04 - 12:56
Hello!
We just finished a 5 day stay in the Epilepsy Monitoring Unit at Dell Children's Hospital in Austin. Quite informative.
Anyway, they want to propose my daughter as a potential candidate for temporal lobe neurosurgery. For her, it would be palliative, not curative, as she also has frontal/generalized seizures. The ones that are the most troublesome for her with the longest postictal period are the ones that start in the left temporal lobe though.
It is very hard to make this decision for her. They want to do a PET scan and some neuropsych testing before proposing her to the committee at the hospital.
Complicating things somewhat is the fact that she has cognitive challenges. She just turned 9, but functions at roughly a 3-3 1/2 year old level. We don't want to further compromise her memory, when she already has to work so hard to learn things.
I suppose that the best way to get information is by asking people who have gone through it. What do y'all think, since you have both done it?
Thank you so much!
~Trish
Hello!
We just finished a 5 day stay in the Epilepsy Monitoring Unit at Dell Children's Hospital in Austin. Quite informative.
Anyway, they want to propose my daughter as a potential candidate for temporal lobe neurosurgery. For her, it would be palliative, not curative, as she also has frontal/generalized seizures. The ones that are the most troublesome for her with the longest postictal period are the ones that start in the left temporal lobe though.
It is very hard to make this decision for her. They want to do a PET scan and some neuropsych testing before proposing her to the committee at the hospital.
Complicating things somewhat is the fact that she has cognitive challenges. She just turned 9, but functions at roughly a 3-3 1/2 year old level. We don't want to further compromise her memory, when she already has to work so hard to learn things.
I suppose that the best way to get information is by asking people who have gone through it. What do y'all think, since you have both done it?
Thank you so much!
~Trish
Re: Left Temporal Lobe
Submitted by tonialpha on Tue, 2007-10-02 - 14:48
I have had 2 surgeries. The first surgery they gave me an antibiotic prior to, and found out I was in anaphylaxisis to vancomycin. I then started having seizures in recovery and they lessened. 10 year later I had a 2nd surgery they felt this surgery will stop the partial status attacks! I was ready. I have a minor problem w/ memory and a little problem w/ sight. I have flurries every other day. I now am married and have 2 teenagers and 1 girl started puberty and that is when my seizures started to and I wonder......... The doctor said your son doesn't have it and none of your other realtives have it, the likely hood is very small. He gave me a 2 - 4% likely hood. I wish you luck Patty!