Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Meeting with a Doc today about surgery
Thu, 01/15/2009 - 12:39Hi all,
I know its kind of a typical question. But it seems to me like 50/50 seem totally cured from having the surgery. I dont know what to do. I'm meeting with a Dr. on Long Island this afternoon to discuss it. My seizures started when i was 20 and they were about 1 a year till i was 25. (27 now) since then i've been having more and more. And when i say seizures, i mean all 225 pounds hitting the floor. Lately they've been more and more frequently and almost always when i've had less than 8hrs sleep.
I'm getting married in July to a great woman, and the worst of all of it is knowing how much it wretches her heart. on Tuesday I had one while driving and by God's hand I Came to on the side of the road un injured, my car barely had a scratch on it! but a few weeks ago I barely made it out of the shower in time and collapsed in the door way and split my brow open.
Anyway, I'm meeting this Dr. Today to see about the surgery. I was hoping I could get a few comments from people who have had it done and seen some long term healing.
Also, i'm just outside NYC, does it matter which Dr. does this? or is it like getting a wisdom tooth out? (pretty standard these days?
thanks,
Kevin
Comments
Re: Meeting with a Doc today about surgery
Submitted by zoe49576 on Sat, 2009-01-17 - 14:43
I Recently Had a Right Temporal Lobectomy on 10-22-08. It was the Best Decision I had ever Made. In the 3 months since my Surgery I have had 1 seizure and that was due to a great deal of Emotional Stress and if that wasn't there I wouldn't have had that seizure. I am glad that I did the surgery. I was having 5-7 Complex Partials a Month.
I hope your Visit with your Dr. Goes well and you get all the information you need to help you make the decision you need to help you better your Quality of life.
Leah
I Recently Had a Right Temporal Lobectomy on 10-22-08. It was the Best Decision I had ever Made. In the 3 months since my Surgery I have had 1 seizure and that was due to a great deal of Emotional Stress and if that wasn't there I wouldn't have had that seizure. I am glad that I did the surgery. I was having 5-7 Complex Partials a Month.
I hope your Visit with your Dr. Goes well and you get all the information you need to help you make the decision you need to help you better your Quality of life.
Leah
Re: Meeting with a Doc today about surgery
Submitted by dpudsy on Thu, 2009-02-19 - 22:12
Kevin,
My darling wife of 48 had surgery to remove the inner part of her hipocampus on 09 Oct 2008, prior to the surgery she was having 5-8 siezure per week. Now, none...since surgery she had two-three aura's. Her short term memory is improving quickly and with hope she will get her license back next year.
This was the best decision we ever made in our lives, Toronto Western Hospital is number 1 and the neuro team is the best.
Keep smiling and hope is always a solution, Dpudsy
Kevin,
My darling wife of 48 had surgery to remove the inner part of her hipocampus on 09 Oct 2008, prior to the surgery she was having 5-8 siezure per week. Now, none...since surgery she had two-three aura's. Her short term memory is improving quickly and with hope she will get her license back next year.
This was the best decision we ever made in our lives, Toronto Western Hospital is number 1 and the neuro team is the best.
Keep smiling and hope is always a solution, Dpudsy
Re: Meeting with a Doc today about surgery
Submitted by sully112099 on Thu, 2009-01-15 - 21:24
I am not allowed to drive in My state due to my epilepsy. I have my licence for ID only. I can't use it for driving it is illegal to. Dr's are supposed to report Epilepsy patients to the RMV. So they won't get behind the wheel because that why you won't injure or kill yourself or someone else. Plus your insure isn't going to cover it either. Better look into all that before you get behind the wheel again.
I haven't driven in 5-6 yrs for that reason. Dr's are looking into the VNS or the Frontal Lobe Brain Surgery for me I go next Friday to talk to the Dr myself.
I am not allowed to drive in My state due to my epilepsy. I have my licence for ID only. I can't use it for driving it is illegal to. Dr's are supposed to report Epilepsy patients to the RMV. So they won't get behind the wheel because that why you won't injure or kill yourself or someone else. Plus your insure isn't going to cover it either. Better look into all that before you get behind the wheel again.
I haven't driven in 5-6 yrs for that reason. Dr's are looking into the VNS or the Frontal Lobe Brain Surgery for me I go next Friday to talk to the Dr myself.