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Possible surgery undecided
Sun, 06/10/2007 - 19:42Topic: Surgery and Devices
Hello everyone.
I have been dealing with this condition for seventeen years now. I have tried several AEDs and have also had a VNS operation. Now, I am discussing the possibility of a right temporal lobectomy with my doctor. However, I wonder if my situation would be unrelated to my seizures and more related to the meds I take. I have had less than ten seizures in the past year, however, the side effeccts that I deal with from the meds are frustrating. Many of you can probably relate to sleepiness, tremor, balance issues...I feel that surgery would be my last chance to become siezure free. I still wake up in the morning wondering if I will have one. Surgery could potenially stop this feeling of helplessness. But is this surgery fear and med- related? Do I have surgery to avoid only these things, or to become seizure free for good? Can someone give me some insight? Thank you!
Comments
Re: Re: Possible surgery undecided
Submitted by anne52 on Fri, 2007-09-07 - 18:35
Hi,
I'm new here. Love your username. It gave me a good laugh! I guess a lot of us on the site are 'floppy",eh?
Take care,
Anne.
Re: Possible surgery undecided
Submitted by floppy on Tue, 2007-06-19 - 10:32
Hi
I am 41 male and I am going through a similar thing---should I get the surgery, or can I tweek the meds just a bit. Whenever I have a grand mak, the dilantin is low, so my body is not absorbing it, or maybe when I exercise, it metabolizes it faster. But when I take more, I get trembly, irritable, etc. So I am thinking seriously of left temporal lobectomy. I worry and feel guilty that, "Well mayby I have tried medicines enough" when I've been trying them for 30 years. I have had countless hospital visits, but then I'll go years without a grand mal. Its just nice to talk to some one in a similar place.
Re: Possible surgery undecided
Submitted by floppy on Tue, 2007-06-19 - 10:32
Hi I am 41 male and I am going through a similar thing---should I get the surgery, or can I tweek the meds just a bit. Whenever I have a grand mak, the dilantin is low, so my body is not absorbing it, or maybe when I exercise, it metabolizes it faster. But when I take more, I get trembly, irritable, etc. So I am thinking seriously of left temporal lobectomy. I worry and feel guilty that, "Well mayby I have tried medicines enough" when I've been trying them for 30 years. I have had countless hospital visits, but then I'll go years without a grand mal. Its just nice to talk to some one in a similar place.