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Surgery-Left temperal lobe

Thu, 09/25/2008 - 19:49

Topic: Surgery and Devices

im 15 and im on trileptal, my seizures are well controled but i still have so many worries about my future. And i hate being medically dependent, it worries me too much. I have a scar in my left temperal lobe, so i was wondering if any one has had surgury done there and like how long the recovery time was, what are soem risks, how did it go, are you seizure free now, and just anything else you could share. It would really help, thank you.

Comments

Re: Surgery-Left temperal lobe

Submitted by mamasaw on Thu, 2008-09-25 - 21:47

My daughter just had left temp. lobe surgery in March.She did great and has not had a seizure since. She did not have too have much hair shaved. She was only in the hospital 2 days. We were very scared at first, but she did so well. It has changed her life for the better. She is 26 now and has had sz for approx. 10 yrs. She has just started to be able to drive again. Good luck, I hope if you have the surgery, it goes as well as hers.

Re: Surgery-Left temperal lobe

Submitted by ahardway on Sat, 2008-10-04 - 16:09

Hi mamasaw. I believe i have talked to you before either here or in the chat room. Any way, I just read about your daughter and am very glad to here that she is doing well. I decided to have Left temporal lobe surgery as well yesterday. I will be having mine November 4th. I just turned 27 this past August and my seizures started 3 years ago in August 2005 (a couple of weeks after I turned 24). It took several EEG's and tests for two years before the doctor's were finally able to find out that they were coming from my left temporal lobe (via a Video EEG done at the EMU @ my local hospital) just last summer. I am confident in my neurosurgeon, but am still a litte nervous. In fact, when I asked him to see the images from my MRI, compared the differences between each side of my brain, and then even showed me exactly what he would be doing. Thanks to whom ever invented PowerPoint, I could see it very clear on the projector. if you don't mind me asking, what medications was she taking before and how much is she taking now. I am currently on 3 meds., 500mg Dilantin, 500mg Lamictal, and 2000mg. Keppra.

Re: Surgery-Left temperal lobe

Submitted by mamasaw on Sat, 2008-10-04 - 18:42

She is on Topamax 500 x 2 and Lyrica 250 x2. She goes back in Dec. and will start to wean off slowly one of her meds, probably Lyrica. She is so excited to get off the Lyrica. It seemed to affect her more than Topamax. After a slow weaning process, she should start weaning off Topamax till she is on a low maintenance dose. We were just talking today about her feeling so much better tonight at dinner. She has such a better attitude about life now. She feels like she has the best chance of the best quality of life now. It has made the most remarkable recovery. Best of luck to you. I know how scary it is, facing this. I will be praying for you and your family. Do you have a good support system? Are you on your own, or have a husband? I wish you the BEST of luck. Where are you having your surgery?

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