Surgical Sucess?

Hello- I had simple and complex partial seizures for about a year before my tumor was found and removed about 5 years ago- they told me at the time that the seizures should go away with the tumor. They did not- how long have you been having seizures? I had been having mine long enough apparently that it sort of 'spread' from the tumor sight into my brain and a month ago had a right temporal lobectomy to have them cut out the brain tissue that was all messed up and causing the seizures- it was the area of my brain that was right behind where the tumor had beenin the right temporal lobe. No seizures so far after that second surgery but be careful to assume that the seizures will go away totally with them just removing the tumor- it's very possible I'm sure but ask your DR.s if it has anything to do with how LONG you have been having the seizures- I was only hving them for one year and they found a little nest in my brain! It was heartbreaking as well... I wish you the best of luck- give em hell too don't let them just say well you'll never know- there is information everywhere- and I'm sure they have a nice little neurosurgical resident that can find it for you ;)

I'm had simple and partial TLE since I was 3 (back when little was known abput E & the only tests that existed were the EEG and X-rays). I also had E surgery early last year, during which time they 'found a tumor' (benign and slow gowing which had existed since my birth) exactly in the area where they were about to operate so removed it along with other usesless areas. Odd thing is that the tests for tumors are almost identical to the ones I had for surgery.. so I'm still perplexed as to their not having found it earlier. It's now been a year and 3 months since surgey and, to my knowledge, no seizures whatsoever. No partials, no discovering myself afterwrds and no one has told me I had a seizure. I'm now almost completely off one drug.. and before long I'll be completely off all AEDs. ~sol