Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
vns theray surgery
Wed, 10/22/2008 - 19:21Topic: Surgery and Devices
hello my name is brenda and my 5 year old daughter is about to under go surgery to get the vns implant i am really nervous about it we went through all the testing to see if she was a brain surgery canidate and she was not that's how we decided to get this one done.herseizures are coming from the back of her brain both on the right and left side.i'm hopping this works thing have got to get better yesterday she had 2 seizures in school and than i'm pretty sure she had her first grandma seizure which scared the hell out of me.but if anybody has had this surgery done please give me your exsperiences or comments. thank you
Comments
Re: vns theray surgery
Submitted by bloxsom on Mon, 2008-11-03 - 13:31
hellomy 5 year old had the vns implant done on october 28th she did very well through the surgery.and right now were trying to get use to the implant we can'tuse the magnets yet until she goes back to the doctors to get the voltage up which will be on november 11th.she has not complained one time about any pain where the insisions are or nothing the stimulatergoesoffone timeevery 5 minutes for 30 seconds.i amhoping that this works.but we won't knowfor about 2 months or so becsuse that got to get it to the right setting.if anyone else has had it done or had a child who had it done please letmeknow how it went.
Re: vns theray surgery
Submitted by tonialpha on Wed, 2008-10-22 - 20:36
I am 50 years older than your daughter. My focus is in the posterior temporal-occiptal area of the brain. It lowered the duration or the timing of the seizures. I still have them but they are a lot shorter and I can zip back to what I was doing. Each patient is different. Your daughter being so young. Hopefully she will grow out of them. Hopefully you will no the cause of them. I wish you the best.