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Community Forum

Topic: Surgery and Devices

Created By: Livestrong_5aa285b245f85 | 08/2019 | 2 Comments

Hello all,

I am Ronnie, from India. Have been seizure free since last 10 years but with medications twice a day. I read success stories of people who had surgery and got well. Is surgery...

Created By: Stacey K | 07/2019 | 0 Comments

Please take a moment to check out Paige’s story. We understand not everyone can donate so please know that we appreciate everyone’s support regardless.

https://www.gofundme.com/f/please-...

Created By: acorona | 07/2019 | 5 Comments

I am 40 years old and have right temporal lobe epilepsy due to a small malformation in my right hippocampus. My neurologist and neurosurgeon think I should do the surgery because medication has...

Created By: jrsymike | 07/2019 | 0 Comments

anybody have laser ablation and had health insurance that covered procedure if not completely to some extent. im having a hard time finding any insurance company willing to cover procedure

Created By: sooihm | 07/2019 | 21 Comments

Hi everyone,
I am going to be evaluated for resection/laser ablation or RNS implantation. The first step will be the intracranial EEG. From the MEG test that was done, there seems to be...

Created By: usmith | 06/2019 | 0 Comments

Hi!

I was diagnosed with epilepsy at the age of 11 (for 12 years now), and see a need for a product to manage seizures that occur in a public place, i.e. away from care-takers and...

Created By: John Davis | 04/2019 | 0 Comments

Hi I'm almost 21 and have been living with epilepsy since I was 9. I've been an extremely active human being ever since I can remember, I had a VNS (vagus nerve stimulator) put in when I...

Created By: sieeenna19 | 04/2019 | 1 Comment

My epilepsy specialist and my neurologist have both been introducing me to the idea of a vagus nerve simulator since they have a 99% success rate with it. Although they have said I need one yet...

Created By: Jake2 | 04/2019 | 1 Comment

I had an VNS implant carried out in 2010 . But in 2015 I moved to Malta where they don't have VNS implant program and since the battery ran out over a year ago, I have developed severe...

Created By: Strong4Love | 03/2019 | 6 Comments

My boyfriend had a Left Anterior Temporal Lobectomy 2/27/19 for cluster seizures brought on from an untreated TBI. Since then, he has had severe headaches/head pains near surgery site and the...

Created By: Erin1971 | 03/2019 | 0 Comments

Just found these & thought I'd share. Can add info with the full name of implant & says no mri no DIATHERMY.
https://www.americanmedical-id.com/checkout/cart/
...

Created By: Shan71 | 02/2019 | 4 Comments

Hi, I'm trying to get an idea of the surgeon cost for a temporal lobectomy in a private hospital. My health fund covers the hospital.
Going to see him in a couple of weeks but just...

Created By: Erin1971 | 02/2019 | 1 Comment

Not looking for medical advice, as I am calling Dr in morning.
I had my device implanted 1/23/19. Tonight I stretched really big & felt a pop. I waited for it to go off again ( every...

Created By: camryn_dufrene | 02/2019 | 7 Comments

So, I had VNS surgery about a week and a half ago and every time it goes off it feels like my throat is tightening and there is a pain where the nerve is. Does this ever go away or lessen or does...

Created By: JohnD_5c2e38793bd42 | 01/2019 | 12 Comments

Hello. I am 42 years old and i have right temporal lobe epilepsy. I have exhausted all the medication changes that are worth dealing with. Now with only a 5% chance of any medications working,...

Created By: Jenn0030_5968b3e028e9b | 12/2018 | 6 Comments

My doctor has given me 4 options for surgery for intractable epilepsy. Additional resection, I had prior partial TL resection & will not have another as 1 foci is near hippocampus.

...
Created By: Caswagerty | 12/2018 | 2 Comments

I’ve had to do 2 surgeries before and now they’re considering a 3rd. If it doesn’t look good then they’ll do a VNS or RNS. Would a 3rd be too many?

Created By: anminer | 11/2018 | 0 Comments

Hello,

I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at straws to find out what is wrong with...

Created By: purple_johnny | 11/2018 | 2 Comments

I have Left Temporal Lobe Epilepsy. Heterotopia (or so-called grey matter) is in my left temporal lobe and is where my seizures' emanate from, as well as blocking seizures' precise foci...

Created By: Lisaw_5aba9d9c41991 | 10/2018 | 5 Comments

Good morning everyone, my name is Lisa. I had left temporal lobe surgery 5 weeks ago. I haven’t had any seizures since then thank God but , my doctor said I still can’t bend over and the only...

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