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Community Forum

Topic: Surgery and Devices

Created By: Thebeesknees | 10/2018 | 4 Comments

Hi everyone.
I have tonic colonic grand mail seizures. I have them, usually, only every few months. Sometimes more frequently, but sometimes less too...
I have a cavernous angioma in...

Created By: Pattyann3 | 10/2018 | 7 Comments

Our son, 14, was diagnosed with tonic clinic seizures that accure mostly in his sleep. Has anyone tried monitoring devices? We are looking at a few for the Apple Watch that will alert if there is...

Created By: beattybob2 | 10/2018 | 0 Comments

My 42 Y.O. son will be getting cataract surgery under GENERAL ANESTHESIA . He takes seizures and are controlled by medications but could have one at anytime. He has about 15 days a month...

Created By: Jules101 | 09/2018 | 2 Comments

I've Right Temporal Lobe epilepsy, not wanting surgery just now I'm opting for the VNS, but it has left me wonderinding if the RNS maybe the the better one of the two. Can anyone help?...

Created By: Atm823 | 09/2018 | 2 Comments

So I got my vns surgery done on 8/29/18 I was sore and uncomfortable at first but now over this pattern weekend I started getting migraines,blurred vision,and ear pain, and up at all hrs because...

Created By: Caswagerty | 09/2018 | 1 Comment

I’ve had 1 surgery in Albuquerque and 1 at Barrow also. Now they’re looking at doing a 3rd surgery at Barrow again after finishing a MEG test. How do surgeries work and how common is this?

Created By: hp18 | 08/2018 | 7 Comments

Hi! I am trying to understand the pros and cons that people have considered while trying to decide whether to go through with epilepsy surgery or not. Not the pros and cons your doctor would state...

Created By: alow26 | 08/2018 | 3 Comments

Hey,

My name is Alli. I haven't really connected with a lot of people with Epilepsy. I started having seizures when I was about 10 years ago and have been struggling with them for...

Created By: camryn_dufrene | 08/2018 | 2 Comments

I'm considering VNS, but a friend was talking to me and had me wondering if there were any limitations after you have the surgery. Like is there anything out of the ordinary that I won't...

Created By: chelseap | 07/2018 | 4 Comments

I live in Hawaii! & I bounced back and forth between doctors and got no answers for 5 years! My epilepsy is in my right temperol lobe. After years of medications not working I took control...

Created By: Raven7777 | 07/2018 | 5 Comments

My daughter starting having seizures several years after being in a severe car accident. She's gone through several medicals to control them. She's now getting ready to be admitted to...

Created By: lauren.malko@gmail.com | 06/2018 | 2 Comments

Which watch works better? Has anyone tried both and can vouch for one over the other?

Created By: jfortier@twmi.rr.com | 04/2018 | 2 Comments

My 22 yo son probably has seizures coming from both sides and his MD wants him to see a surgeon for brain mapping. Can anyone tell me if you have had this done and what your experience was with...

Created By: Djervis | 04/2018 | 2 Comments

I have dealt with Epilepsy for over 30 years. My seizures were controlled by Dilantin for all those years. For some reason lately, Dilantin does not work. I am seeing a neurologist and have...

Created By: RubyRose | 04/2018 | 10 Comments

My name is Casey and I’ve had refractory seizure for 25 years now. They are complex partial and from what is known most originate from the left side of my brain. I met with my epilepsy...

Created By: akr732 | 04/2018 | 2 Comments

I was accepted to medical school (before epilepsy diagnosis). In my final year of undergraduate, I started having seizures and was diagnosed with epilepsy.

Since then I have deferred...

Created By: eccats18 | 04/2018 | 1 Comment

Hello I am trying to raise money to help cover my bills while I am recovery from RNS surgery. My company would not approve me for Short-term or Long-term disability, so I will have only my...

Created By: adutoit | 04/2018 | 1 Comment

Hello everyone - my daughter had intractable seizures coming from the right occipital lobe due to a brain malformation. She underwent surgery today to resect the occipital lobe on the right. The...

Created By: KelKel | 03/2018 | 4 Comments

I have taken a ton of medications...6? Nothing fully controls my seizures, and they all made me so tired and depressed and distracted. Has anyone had any negative mood/personality effects from the...

Created By: Manda2116 | 03/2018 | 1 Comment

I was wondering if anyone had a VNS removed? I have had mine for 4 years and it was giving me problems. I had it removed yesterday. I am in the worst pain I have ever felt. I wanted to know if...

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