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Community Forum

Topic: Surgery and Devices

Created By: SassyMindy | 07/2008 | 18 Comments

I have been thinking a lot lately about how so many people here have experinced depression after brain surgery.  It seems to be a subject that is big but not largely talked about. I myself am...

Created By: xoladykittenox | 07/2008 | 2 Comments

hi everyone...i just wanted to know people's experience with having a left temporal lobectomy...the good and the bad :o)

Created By: susangibson | 07/2008 | 3 Comments
next month abby is to have her vns removed and replaced with the newer smaller model. she has had hers since 2000. i am seriously considering having it removed. she has had it turned down and there...
Created By: ahardway | 07/2008 | 11 Comments

Hi.

My name is Anna, and I  have had Complex-partial seziures for the last 3 years with no known cause.  I am a 26 year old woman who has been and continues to be in general good health...

Created By: atu276 | 07/2008 | 1 Comment
Needing support and ideas on dealing with my upcoming surgery (amygdalohippocampectomy).  What are some of the things I can expect when I go to my room after the surgery , I'm more worried about...
Created By: | 07/2008 | 7 Comments

 

HI all,

 I have been on here with a story about my VNS about 3 or 4 months ago.   But now it gets even better.  I am at 2.25 amps.  IT is running on a cycle of 5 minutes OFF...

Created By: Jennyrose2kids | 07/2008 | 4 Comments

Hello Everybody !  It has been two years since I had surgery - it still feels like it was only a couple of months ago.  I want to know if anybody had surgery more than one time because of...

Created By: ahardway | 06/2008 | 1 Comment
Hello, my name is Anna and I am having the WADA Test done on me this comming Friday, June 20. If anybody has or has known anybody who has had it done or has had surgery done on thier teporal lobes,...
Created By: butch1992@my.epilepsy.com | 06/2008 | 0 Comments
My son was born with Hypospadia, a congenital anomaly that involves the male sex organ... The opening on his sex organ is under his scrotum which makes it difficult for him to pee as the other kids...
Created By: RacerX35 | 06/2008 | 4 Comments

Well, I just went in for surgery on the 30th. of May.  I remember coming out of it with my wife and family nearby.  I was really looking forward to the whole experience.  It has been somethiing...

Created By: WJM | 05/2008 | 1 Comment

Hello everyone,  My scetch of epilepsy life goes: I begin having seizures at age 2.  Not sure what year they did the tests, but they found a benign brain tumor.  I started anti-seizure meds and...

Created By: maymae | 05/2008 | 1 Comment

 Hi there. I was just wondering if someone out there might be able to help me. I have had absence seizures for 29 of 34 years. I have had the VNS implant for 4 years. And things are going ok....

Created By: maymae | 05/2008 | 1 Comment

 Hi there. I was just wondering if someone out there might be able to help me. I have had absence seizures for 29 of 34 years. I have had the VNS implant for 4 years. And things are going ok....

Created By: vincent0ne- | 05/2008 | 2 Comments

Hey to all

 

Except the return of seizures due to keppra dosage, Has anyone experience brain spams or twinges after their surgery. As these seems to paralyse u in someway for...

Created By: vincent0ne- | 05/2008 | 3 Comments

Hey all

 

Some but not all may remember me before year 2007. As for those who remembered me, I had a walnut size brain tumour removed on 7/12/06. I was asked to start weaning...

Created By: Marcia M | 05/2008 | 5 Comments

I am new to this website and this is my first post. My12 year old son had an anatomical hemispherctomy April 16 2008 for his partial complex seiuzures which he had had for 7 years. He was born...

Created By: ahardway | 05/2008 | 1 Comment
Hey everyone! I have been  on the waiting list to  surgery at  my local  hospital since November 2007. I had my  first WADA Test scheduled in November of 2007 when the nurses were told by the...
Created By: reba | 04/2008 | 13 Comments

I had right temporal lobe surgery done in '07, and I'm curious to know if anyone who has had this surgery still have, as I call them, little bumps around the surgery site? Although i feel great...

Created By: composer25 | 04/2008 | 3 Comments

Hello everyone,

"What was it like? Do you still have any? How long did it take for you to recover? Were you scared?" These are just a few of the...

Created By: quirky | 04/2008 | 11 Comments

Hi,

I have parietal lobe epilepsy and have just found out yesterday that I got the green light for surgery.

I hav yet to meet the neurosurgon and discuss how successful it could...

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