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Community Forum

Topic: Surgery and Devices

Created By: wn | 03/2018 | 3 Comments

has anyone tried embrace from empartica?

https://www.empatica.com

any feedback?

Created By: FalonLove | 03/2018 | 2 Comments

So I’m having my deep tissue probes put in on May 2nd and I’m looking for ANY advise on what to expect on how I will feel pain wise or anything after I have them removed.

Created By: Jacqueline Erasmus | 03/2018 | 1 Comment

Hi, I’m looking for advice on vns therapy and pregnancy. Is it possible? I’ve been trying to look for information regarding this however they only say there is not enough studies made on this. Can...

Created By: Caswagerty | 02/2018 | 0 Comments

My name is Allen. I’ve been through countless tests and medications. And I have been through 2 brain surgeries. One at UNMH in Albuquerque, New Mexico and one at Barrow in Phoenix, Arizona. My...

Created By: Cynthia10 | 02/2018 | 9 Comments

I have right side temporal mesial sclerosis. My neuro is discussing surgical options as I am running out of medications we can try. I am an artist. Did any of you who had surgery have and deficits...

Created By: john7844 | 02/2018 | 4 Comments

I have a 20 year old Grandson away at college and his Mom would like to monitor. He is an athlete and has occasional night seizures. Anyone have experience with the new "smartwatch"...

Created By: brj8832 | 01/2018 | 3 Comments

I'm new here so this is my first time posting (hope I'm doing this right)! :) I've had epilepsy since 1988. I had surgery 3/1995. Had great control for 15 years then I started...

Created By: MC_5a53c0cb79487 | 01/2018 | 19 Comments

Hello everyone my name is mike, and I have complex partial seizures caused by right temporal lobe epilepsy. I have viewed this forum a few times, but this is my first time making a thread.

...

VNS
Created By: Highcarbon1 | 01/2018 | 0 Comments

I had a vns stimulator put in not long ago. I'm having a real bad side effect. I'm getting migraine level headache everytime I use the bathroom. I was wondering if this has happened to...

Created By: KimB713 | 12/2017 | 1 Comment

Over the past 7 years, I’ve been battling, both, Epilepsy & Autoimmune Limbic Encephalitis. I’m very grateful to have received comprehensive care, including 2 brain surgeries, from an...

Created By: GF70 | 12/2017 | 9 Comments

I was trying to learn more about this case where Aetna is not allowing one of their customers to do laser ablation. Cara Pressman, the subject of the story, is trying to get her insurance company...

Created By: DropSupport | 12/2017 | 0 Comments

Hello Everyone,

May name is Edwin Aragon, brother of Leslie Aragon who currently suffer's with LGS, Atonic, and Tonic seizures. One of our families biggest challenges in providing care...

Created By: truckin1 | 11/2017 | 1 Comment

Hi all,

I'm trying trying to gauge interest for a possible start-up venture. We believe we can create a special pair of glasses that can filter out the types of visual triggers that...

Created By: jbro | 11/2017 | 1 Comment

Has anyone had experience using the above-mentioned seizure monitoring device or app for Apple watch? Which works better? I have had simple partial and complex partial seizures. Some Complex...

Created By: HB_LongboardCrew | 11/2017 | 4 Comments

My son, Billy is scheduled for surgery and I am concerned that SUDEP will occur before that surgery happens. I am constantly checking in while he sleeps. I am afraid of disturbing him or upsetting...

Created By: omar ortiz | 11/2017 | 0 Comments

Does anyone know if a blood clod can be removed or drained
I was assaulted put in a coma & torture in the hospital in late 1996.I ended-up with seizures & ptsd taking up to...

Created By: RTLEmum | 10/2017 | 5 Comments

Did any of you wean off your epilepsy medication after temporal lobectomy? How did you decide whether or not to go for it knowing that seizures could reoccur? Were you worried about seizures...

Created By: Hgott | 10/2017 | 9 Comments

Hi all! Quick back ground I was diagnosed in 2008 complex partials with a grandmal tendency. I had my rphone gut hippocampus removed in sept of 2010 and have been seizure free! The last couple of...

Created By: Adam harrison | 10/2017 | 6 Comments

Hello guys i just underwent my epilepsy surgery on sept 30 on my right temporal lobe surgeon said everything went a success I'm here sharing my story i was diagnosed with epilepsy when i was...

Created By: birdman | 10/2017 | 1 Comment

I want to hear from others who have had the RNS system implanted into an area where doctors previously removed tissue. I had one doctor at a major medical hospital assure me they could not...

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