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Community Forum

Topic: Surgery and Devices

Created By: rubbersoul | 06/2007 | 5 Comments
I am a student at the Medical University of South Carolina, and have been living with epilepsy since I was eight. I decided to make epilepsy a focus of a study, and hopefully I can use the members of...
Created By: tcamargo | 06/2007 | 0 Comments
Share your benefits/complication stories about the VNS.
Created By: Rob J | 06/2007 | 7 Comments
My amygdalahippocampectomy happens in tens and I am getting to that soul searching point. I have over analyzed, over stressed, over emotionalized both the pros and cons of doing the surgery....
Created By: AnneC | 06/2007 | 3 Comments
My 10 year old son is being scheduled for corpus caliscotomy surgery in July. He has a long medical history which began with leukemia 8 years ago. It is hard to fathom after all he has been through...
Created By: corgilady | 06/2007 | 2 Comments
Hello to all of you. I have been silent just reading posts most of the time. Yes it will be a year on 7-7-07!! What a set of numbers!! As of the date posted I will be seizure free for one year. I...
Created By: daisy97 | 06/2007 | 6 Comments
Hello everyone. I have been dealing with this condition for seventeen years now. I have tried several AEDs and have also had a VNS operation. Now, I am discussing the possibility of a right temporal...
Created By: Angie m | 06/2007 | 19 Comments
I have complex partial seizures. Surgery is coming up, and I have been doing so much preperation for it. The closer it comes the more nervous-scared I get. I am 29 living on my own but cannot drive,...
Created By: quirky | 06/2007 | 3 Comments
Hi everyone, I just wanted to share with you all the good news I got today from my neuro that I am in fact a candidate for surgery even though I have a few more tests yet to be done. My neuro...
Created By: mryan74 | 06/2007 | 3 Comments
Hi everyone. My name is matt. I had surgery to remove part of my right temporal lobe last wednesday, to alleviate and hopefully stop my epilepsy(3 year sufferer). The surgery was a...
Created By: Munchkins mum | 06/2007 | 3 Comments
I am new here, but wanted to let others know who may be looking into the surgery or have recently had it done. My surgery was performed on me back in November 1986. I have been totally seizure free...
Created By: alexis00 | 06/2007 | 0 Comments
I had surgery two weeks ago and the most significant side effects I experience now are headaches, dizziness if I walk around too long and fatigue. From experience, does exercise help? Anything anyone...
Created By: sarah22 | 06/2007 | 1 Comment
I would love to share my story if your interested. I had surgery May 14th of this year.
Created By: rosegirl | 05/2007 | 3 Comments
I have seizures in the temporal central lobe and my hippocampus. If anyone has had surgery on either one of these areas or both, could you tell me about it, please? Thanks!!
Created By: alexis00 | 05/2007 | 1 Comment
I had a benign tumor removed from my temporal lobe less than two weeks ago, in case anyone is going through anything similar, and I'm sure there are many that are. I finally met with a great...
Created By: apinsley | 05/2007 | 3 Comments
In January of 1991 I had successful surgery to my right temporal lobe. I had been having seizures since the age of 14 months old after a febrile seizure. My surgery was performed at Yale-New Haven...
Created By: | 05/2007 | 2 Comments
I had left-temporal, amygdalo-hippo surgery 2 and a half monthes ago at the Mayo clinic. Is it ok to have any sort of strange feelings? I am very paranoid about having another seizure, ever. I...
Created By: coyowife | 05/2007 | 16 Comments
Help, I am very confused. My daughter is 11 and has partial complex seizures. Her seizures occur primarily at night and last for 1-3 minutes. She has these seizures in spurts of 2-4 every 3 weeks...
Created By: PF | 05/2007 | 1 Comment
I had a right temporal lobectomy one year ago to treat simple and complex events I endured for the last 20 years. (I'm 43 now.) Since surgery, I've had four events, one of which generalized. I...
Created By: rosegirl | 05/2007 | 10 Comments
At my last neuro appt. I got the feeling that he wanted to cut into my brain. I know that everyone who has gotten brain surgery and has come out on top, sing nothing but it's praises. You never hear...
Created By: | 05/2007 | 6 Comments
HI, I used to be long to this group but I had to leave becasue I got really sick that i got really nasty with people and I just had to go. Well the problem was an huge increase in seizurez...

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