Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Surgery and Devices

Created By: cxdavis | 03/2007 | 4 Comments
Sorry so long ... We are just begining the consideration for Epilepsy Surgery. At DD neurology visit yesterday, the neurologist brought up the possibility of surgery. This was her first mention of...
Created By: PaulF | 03/2007 | 2 Comments
Has anyone undergone a second surgical resection? I've experienced seizure recurrences three times since my RTL in June of 2006. The program director at the hospital that performed my surgery has...
Created By: mommy2kyra | 03/2007 | 3 Comments
I've been battling one physical trouble after another since my surgery, and wondering how common it is?? GERD and esophagitis, chronic hives, intracranial hemorrhage (caused by my slipping on ice...
Created By: Peter Bloom | 03/2007 | 3 Comments
Does anyone have experience seeking a second opinion in regard to surgery? Also, do you know whether insurance plans usually authorize and cover second opinions for this? thanks, Pete
Created By: maryhenley | 03/2007 | 3 Comments
OK, so I had the right temporal lobectomy on January 3rd this year and am experiencing some odd problems now. I haven't had a period since January 3rd (no I'm not pregnant) and I'm only 39 but my OB...
Created By: cheryl doran | 03/2007 | 5 Comments
Hi everyone, My 10 yr. old son Gabe had a R. frontal resection for cortical dysplasia on Feb. 9th of 07. He has done extremely well. He was home 2 days after the resection and back to school 2 weeks...
Created By: Raid | 03/2007 | 5 Comments
Hi everyone, A had a very scarey night last night. I have a question for everyone who has had surgery on this site. I went out on the town last night with a bunch of friends. I had a very good meal....
Created By: cowellgirl | 03/2007 | 4 Comments
HI There Has anyone had any trouble taking the herbal anti-depressants St. John's Wort? I had severe increase in seizures and had to report it. Thanx
Created By: Matt Pauls Mom | 03/2007 | 18 Comments
My son has been advised to consider having surgery. My concern is the area that his seizures seem to originate. I can't seem to find any info on surgery in this area of the brain, most of the...
Created By: Peter Bloom | 03/2007 | 2 Comments
My daughter is 27 years old, has had intractable epilepsy for 7 years and has recently been determined to be a candidate for brain surger. I just read the article "The Bell Curve: What happens when...
Created By: mommy2kyra | 03/2007 | 9 Comments
The roads are very slippery here, with thick ice. Leaving church this morning, with my 2 young girls, I fell. Not only did I fall, but I fell *very* hard onto the back of my head. I couldn't even get...
Created By: gregg9130 | 03/2007 | 5 Comments
HAS ANYONE HAD THIS?I'M SCHEDULED TO HAVE INTRACRANIAL MONITORING W/GRIDS BY WAY OF CRANIOTOMY.IF I'M LUCKY I WILL HAVE A RESECTION RIGHT AFTER.I HAVE LEFT FRONTAL LOBE SEIZURES.CAN ANYONE SHARE...
Created By: Jim00512 | 02/2007 | 2 Comments
I was recently at a new Neurologist. She presented to me Surgery options. Has anyone here had surgery? Feel free to email me at strongbull00512@aim.com. I am interested in hearing any thoughts or...
Created By: gregg9130 | 02/2007 | 6 Comments
despite my username i am gregg not greggs wife.on march 12th i will go to mayo clinic to have intercranial monitoring with grids done.if this pinpoints enough i will have a resection a couple days...
Created By: alexis00 | 02/2007 | 21 Comments
When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't...
Created By: lisam11463 | 02/2007 | 2 Comments
Hello everyone, my name is Lisa-Marie Kinsman and I am an epilepsy advocate/counselor to over 1,600 people worldwide online. It has taken me about 15 years, on and off, to finish writing my...
Created By: caboose | 02/2007 | 5 Comments
Hey all! Usually, I don't like to post something general and rather undefined, but I don't want to read a general summary on google, I want actual stories and opinions... Well, I suppose that's a...
Created By: shelly maire | 02/2007 | 16 Comments
I am scheduled to have my surgery on the 17th of April. At this point I am trying to get my affairs in order. I have a couple of questions for everyone. My first questions is how many of those who...
Created By: pixiedust | 02/2007 | 5 Comments
http://www.geocities.com/antaressapphire/ click the link above if you wanna read up on what I went through, I hope it gives everyone some...
Created By: forestams | 02/2007 | 1 Comment
Hello everyone- Quick survey of sorts- did having seizures the week or so before your surgery have any effect on the outcome/success of your surgery? I'm having a RTL on March 1st and I had a...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P