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Community Forum

Topic: Surgery and Devices

Created By: Jahira-Tor | 02/2007 | 1 Comment
Well my feance had his epilepsy surgury 6 months ago now, he was having at the very least a sezure a day. Since the surgury he hasnt had a single one, not even an aura! Now we're engaged and starting...
Created By: rosalieh | 02/2007 | 7 Comments
I'm about to start the first phase of evaluation for being a surgery candidate at the Cleveland Clinic, I've had complex partial seizures most of my life, tried almost all of the meds, and I'm now...
Created By: fms3637 | 02/2007 | 5 Comments
Hi everyone, I'm scheduled to have a LTL this Friday, 2/16, and am wondering how mobile you all were after coming home. I'm having it done at UCSF, and was told I would probably leave by Monday or...
Created By: shelly maire | 02/2007 | 4 Comments
Well I have been approved to have a left temporal lobectomy with removal of the hippocampus and the amybalus. I am having the surgery done at Mass General on April 17th. Wish me luck. Shelly Maire
Created By: pixiedust | 02/2007 | 6 Comments
Well, I finally had my head staples removed. It wasnt a pleasant experience, but Im glad theyre out. No matter how much of that numbing stuff he put on my head, it still kinda hurt when he pulled...
Created By: Billy | 02/2007 | 1 Comment
My 3 year old son suffers from intractable simple partial seizures originating in the motor strip and affecting his right leg. Surgery is considered but will impact on the use of his right leg. Has...
Created By: pixiedust | 02/2007 | 1 Comment
well, my original post was deleted because I was silly and accidentally deleted my account. anyway, I had a right-frontal crainotomy on January 25th... so I thought Id answer the age old question....
Created By: maryhenley | 02/2007 | 6 Comments
Greetings, Was wondering what sort of level of physical activity was allowed and how soon after surgery? I had my RTL on Jan 3rd and I was told to avoid strenuous activity for 3 weeks. No lifting,...
Created By: | 02/2007 | 0 Comments
Ahhh yes, it feels great to give people some insight, because I was nervous about brain surgery as well! I just had a right frontal surgery on the 25th. I was prepped for operation....they started...
Created By: | 01/2007 | 6 Comments
I had surgery on 1/25 and it went really well! It was a right frontal surgery to remove an AVM that was 2-3 cm in diameter. Im feeling better by the day :) Im glad its over! But Im still on meds and...
Created By: maryhenley | 01/2007 | 20 Comments
Anyone else have the monster headaches following surgery? I had mine done on Jan. 3rd and was doing quite well, and then about two weeks post op the headaches started. I am still working with my...
Created By: dmh | 01/2007 | 18 Comments
Hi everybody. To my friends out there I wanted to let you know that I have finally finished all of the testing and they are going to perform the surgery next month to remove part of my hippocampus...
Created By: carrieb | 01/2007 | 1 Comment
Anyone had it in San Antonio? If so, who was your surgeon?
Created By: maryhenley | 01/2007 | 1 Comment
Has anyone here who had the RTL experienced severe facial swelling following the surgery? I had my RTL on January 3rd, and was doing pretty well until today when my eye swelled shut and the rest of...
Created By: | 01/2007 | 0 Comments
Sorry about all my topics, lol. But my neurosurgeon tells me that after he removes my cavernous hemangioma, he will be putting a titanium disc the size of a dime in place of it. Will it hurt? And...
Created By: mulleca | 01/2007 | 8 Comments
I am going in on the 24th for a left temporal lobectomy grid placement and mapping and they will remain until febuary 2nd. If my speech isn't in the way, they will remove my left hippocampus on the...
Created By: maryhenley | 01/2007 | 8 Comments
Anybody have any info on how they dealt with the pain issues from the jaw and the incision pressure? All in all it could be worse but I have to admit I am hurting. The depression is also setting in a...
Created By: | 01/2007 | 8 Comments
Hi everyone, my name is Christine. Im 21, and I was diagnosed with a cavernous hemangioma in October 2006. I had two seizures from it, a petit-mal/partial(?) last August, and the grand-mal in October...
Created By: Avs | 01/2007 | 0 Comments
I am a 22 yr old female who is going to have the right temporal lobe surgery done next week Thursday. I was just wondering what life is like after the surgery is completed and what to expect during...
Created By: jrsocean | 01/2007 | 7 Comments
First of all, hello to all of you. This is my first post to this site. I have always tried to deny my epilepsy since my seizures were nocturnal. However, last year I had began to have them during...

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