Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Surgery and Devices

Created By: zanesmom | 08/2006 | 2 Comments
The neurologist called last night to say they discussed my son's case at surgery conference last week and want to proceed to the next step which is placing the grid on his brain to determine exactly...
Created By: szusd037 | 08/2006 | 10 Comments
I am having surgery to remove a 7-8 mm tumor or lesion in my right Temporal lobe next Weds. I have had an increbidly positive attitude about the situation but now I am starting to get a little scared...
Created By: Peter Bloom | 08/2006 | 2 Comments
My 27 year old daughter has intractable epilepsy and is a candidate for surgery. There is a lot to learn, for her and our family, in approaching this. I'm looking for ideas and resources (articles,...
Created By: forestams | 08/2006 | 5 Comments
So the Doctors say I'll be okay if I decide to have surgery- maybe a small blindspot if they cut up an optic nerve. Questions to those who have had this done- 1. Did you all have headaches? cause...
Created By: Kelly G. | 08/2006 | 4 Comments
I am ready to choke the people who work for the state and don't seem to care about anyone else. I finally have my surgery planned to help stop my seizures, on Sept 27th at Albany Medical Center and...
Created By: catfishwink | 08/2006 | 0 Comments
Hi my name is Dan Winkowitsch I had brain surgery for epileptic seizures 7 years ago at Rochester Min.I am from Dumont ia it is a relief for me that i have not had a seizure for that long of time.My...
Created By: janeart | 08/2006 | 1 Comment
Hi, Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no history...
Created By: maryhenley | 08/2006 | 10 Comments
Just checking, I had the test done last week and the bruising is getting worse as is the swelling. Also have a smallish lump at the cathater site. Has anyone else here experienced this following...
Created By: WendyBendy | 08/2006 | 13 Comments
I went to the doctor Tuesday and told him I had 2 more seizures this past month. I have at least 2 a month and have tried Dilantin (still on), Keppra, Topamax, Zonegran (just started), Depakote...and...
Created By: rsuarez | 08/2006 | 2 Comments
Our 20 yr. old daughter is having a functional hemispherectomy on Sept. 11, 2006. Does anyone have or know of anyone who has had this procedure done? She already has left hemiparisys and suffers from...
Created By: danasdad | 08/2006 | 0 Comments
My daughter is being considered for a Corpus Callosotomy. She is 36 years old and has had intractable seizures since early childhood. She has a VNS which she has had for over 10 years. I am trying...
Created By: shannon1220 | 08/2006 | 32 Comments
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that...
Created By: dacostan | 08/2006 | 1 Comment
Hello, I was hoping someone out there can help me. My sister, who just turned 30, recently underwent front temporal lobe surgery. 4 months have passed and she isn't having seizures anymore however...
VNS
Created By: tbrdman | 08/2006 | 4 Comments
Anyone out there still talking about VNS? I have had mine since Dec. 2004 and believe now that it screwed up my nerves. I didn't even notice it for about 10 months, except for the hoarseness in my...
Created By: CLC | 08/2006 | 7 Comments
My little boy (8 years old) will be having a VNS put in on Aug.22. I have been looking for information to tell me more about how it will affect him. He doesn't understand how to communicate hurt or...
Created By: Kelly G. | 08/2006 | 2 Comments
I've had seizures for 11 years now. My memory is fading, with names very hard to remember, sentences that come out wrong -'I have to close that,' when it's 'I have to turn that off.' and i'm only 31...
Created By: jessicarozen | 07/2006 | 7 Comments
Hello, Our 3-year-old daughter has had seizures since she was 9 mo old. She was diagnosed with infantile spasms. She is significantly developmentally delayed, on numerous medication and still has...
Created By: ackling17 | 07/2006 | 21 Comments
i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one dosage...
Created By: ladybug | 07/2006 | 24 Comments
Hey all, Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th. I've read all the material out there about surgery AND brain mapping....
Created By: sallyshredder | 07/2006 | 10 Comments
Hi there, I know it's too early to ask, but I was hoping for feedback. I can't help but wonder about the surgery effects, even though the option has not yet come up. My goal is to work as a college...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P