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Community Forum

Topic: Surgery and Devices

Created By: maleki | 07/2006 | 0 Comments
hi i need surgery for my illness epilepsy since 1986 when i was 17 years my epilepsy was started during one shock in hot whether and tiredness and up to now i have and also i use drugs 1-...
Created By: Jonathan82 | 07/2006 | 0 Comments
Has anyone on here had temporal lobe surgery at Johns Hopkins? I will be on August 3rd. Just curious, nervous, etc...
Created By: dgpatel | 06/2006 | 7 Comments
Hello All, I have had seizures since I was 10... now I am 26. I have been through alot as many of you.... I don't know exactly how I became epileptic.... I thought it was due to a blow to the head...
Created By: trese291 | 06/2006 | 5 Comments
My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I would...
Created By: corgilady | 06/2006 | 4 Comments
Yes they call today to schedule my surgery. My stomach sank as we talked. Quite a reality check when the phone call comes. I hope that the number 7 is luckey for me 7-7-06. Anyone that would like to...
Created By: mommy2kyra | 06/2006 | 5 Comments
I had my left temporal lobe resection 3 months ago, and testing begins tomarrow. We will see how successful the surgery was. I am a basket case (for many reasons, which I'm sure you can understand...
Created By: RBLWMN | 06/2006 | 4 Comments
My daughter had the "epilepsy surgery" in October of 2004. It has had wonderful effects for her. She still has absence & simple partials but NO grand mals, thank the Lord. She was at camp last...
Created By: trulyblessed | 06/2006 | 2 Comments
I am scheduled for plastic surgery and a re-implantation of my VNS device that once again has come unanchored on July 7th. I have had my device installed since September of 2004 with no luck of it...
Created By: chvr | 05/2006 | 3 Comments
i am wondering if anyone has had persistant double vision following surgery. i had right temperal surgery alomost three week ago now. At first my double vision was everywhere, Now it seems that only...
Created By: norma4797 | 05/2006 | 6 Comments
Hi, this is my first time on this list and posting. My daughter Claudia has had epilepsy now for 3 years. She is an active, beautiful and very social 8 year old and is an only child. She has been...
Created By: vande_2004 | 05/2006 | 1 Comment
My name is Greg. In 1990 i underwent surgery in which a part of the cerebral cortex (outer layer of the brain) was removed from both my left frontal & left temporal lobes. After undergoing this...
Created By: chumtochatwith | 05/2006 | 2 Comments
Well, I am new to this site. I am going to have left temporal lobectomy done in June of 2006. I can't wait! (I must be crazy or something!lol) I was diagnosed thirteen years ago and have...
Created By: Nathan24 | 05/2006 | 4 Comments
I just started these chat rooms for epilepsy and I have had epilepsy for most of my life. I have gone through tegretol, keppra, and lamictal. I am scheduled for depth wire testing on the 31st. If it...
Created By: jefftj | 04/2006 | 2 Comments
WOW! I saw my neurosurgeon on Wed. and he said MRIs look just as excpected. I've gone 47 days without a problem, a record for me.I wasn't a candidate for temporal lobe surgery because of health...
Created By: lynanne | 04/2006 | 25 Comments
This ? has been asked before, but I'll try again. not much response to the last person who asked. i guess not many people have frontal lobe surgery. my 25yo daughter may be a good candidate for it. i...
Created By: waves5 | 04/2006 | 1 Comment
I was born with a benign glinoma brain tumor and had right temporal surgery as a child at age 9 to stop complex seizures. I have been having auras ever since teens and suffered depression/learning/...
Created By: acudetox | 04/2006 | 9 Comments
My Wife underwent Left Temporal Lobectomy Surgery Last Year in Jan 2005. After being home for 3 days after a week after the surgery everything was fine, then on the 4th day I think it was she fainted...
Created By: Stephie51 | 04/2006 | 0 Comments
My son has damage to his peripheral vision(left upper fields of both eyes due to a Right occipital tumor.It might have become a little worse after the tumor removal but it's still early to tell since...
Created By: lucreaia | 04/2006 | 2 Comments
I have intractable seizures, where the seizures have been tested and are coming from both sides of my brain. I am a candidate for surgery, but taking out a piece of my brain is not an option. There...
Created By: pinkangel_82 | 03/2006 | 22 Comments
Hello As some of you already know I had my Wada Test done last week and I have been told now that I am a candidate for surgery. I just seem to have so many thoughts whizzing through my head at the...

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