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Community Forum

Topic: Surgery and Devices

Created By: jac_tx | 08/2005 | 1 Comment

Hi, Paola.  Your English is very good!  "Most doctors I asked in my country(what is Poland)told me surgery is only for people for whom epilepsy is a danger itself,for all those who do not even...

Created By: simpson_jr | 08/2005 | 3 Comments

Hi,I recently read an article on memoryloss in a dutch epilepsy-magazine. It said that surgery and VNS can help a lot of epileptics with memoryproblems. My story...28 years back I started noticing...

Created By: winders54 | 08/2005 | 8 Comments

I am having a Wada test in a few weeks. I dont know what to expect other than the vague and somewhat scary description I have read from my doctors. Has anyone been through this teat who can tell...

Created By: dfriedman | 08/2005 | 4 Comments

Hello everyone, I am in a pickle.  a couple of months ago I spent 2 weeks in the hospital to catch a seizure.  I was already scheduled for surgery but my doctor wanted to see one more because the...

Created By: sophie3272 | 07/2005 | 7 Comments

I have reflex reading epilepsy, which has been extremely difficult to treat since I was diagnosed 3 years ago.  Have gone through drug after drug.  Have myoclonic, GTC, and partial complex...

Created By: EHammarstrom | 07/2005 | 6 Comments

Hello All,I am a 40 year old male who has had E all of my life. I am dealing with it well, sometimes (like all of us), I wish I didnt have E. I know that is selfish for there are people worse off...

Created By: Anonymous | 07/2005 | 0 Comments

Several years after my seizures started in 1987, I started believing that it had something to do with my digestive system. Ever since July 1994, I know it does. With my problems always starting...

Created By: adam | 07/2005 | 8 Comments

I am afraid of cataract surgery if I have a seizure. How can I protect myself and is injury inevitable or not?

Created By: dfriedman | 06/2005 | 1 Comment

Hello everyone,Thank you for your kind words and support.  Here is what happened.   A couple of weeks before the surgery date a group of people came over to my house and prayed over me.  They...

Created By: suten | 06/2005 | 36 Comments

Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?

Created By: lovinlife78 | 06/2005 | 2 Comments

After years of adjusting his medicine, my boyfriend's neurologist referred him to a specialist (who was outside of his insurance network). His insurance honored the referral and approved a...

Created By: dfriedman | 06/2005 | 26 Comments

Hello everyone,I am having a temproal lobectomy on June 14.  Anyone out there have this surgery?  Please share.Diana

Created By: chic | 05/2005 | 2 Comments

Our daughter has just done a video eeg. We thought the seizures were comming from the temporal lobe, but have now found they are originating in the parietal lobe. She goes for MRI tomorrow to see...

Created By: kja326 | 05/2005 | 18 Comments

Hi, my name is Kathy and my twin sister has had epilepsy for 30 + yrs.  She has been ok'd for left temporal lobe brain surgery in the near future. Is there anyone out there who has had the surgery...

Created By: meningiomamommakelli | 05/2005 | 16 Comments

hello there,I have posted many times here and thought I would update all of you on my progress. A week ago yesterday I had brain surgery to have a right temporal lobe meninigoma brain tumor...

Created By: Belinda | 05/2005 | 24 Comments

Hi I'm going through more again and again.Brain surgery I've had they won't operate on my left side .Right Side was operated on scar tissue was removed.Seizures coming from other side now.VNS...

Created By: mak1123 | 04/2005 | 7 Comments

my seizures are left temporals, my MRI s show nothing abnormal.  I have smaller seizures once a week, and a few gran mals a year.  my meds are having control of my life.  my memory is slowly...

Created By: cedar | 04/2005 | 1 Comment

I have just returned from seeing my Epileptologist and reported how once the VNS was turned off I felt so much better and that my Seizures went from alot while it was on, to only a few. She wants...

Created By: cedar | 04/2005 | 38 Comments

I had to post this here as I posted in the General Folder but I find this a good place this. I had the VNS implanted last Fall, lost my voice for 8 weeks due to vocal cord paralysis, once back I...

Created By: saffr0n | 04/2005 | 3 Comments

Hi there, my husband and I just visited the surgeon last week and he informed us that the only real option now is surgery. Tabs haven't been working and are unlikely to after a period of 5 yrs sz...

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