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Community Forum

Topic: Surgery and Devices

Created By: ef4alamo | 05/2017 | 0 Comments

Hello I was wondering if any one ever had a VNS device put in them to help prevent drop seizures. My doctor wants me to have one put in me to help prevent my drop seizures. Also does it help...

Created By: audrobinson393 | 05/2017 | 2 Comments


Sorry for the vanity question, but I'm wondering if anyone has had the SEEG test/surgery and if they have to shave your head?

Thank you!!!!

Created By: Jlares0616 | 04/2017 | 1 Comment

I'm seeking for some sort of answer to what recently happened to me. I went through a VNS surgery 2years ago and my epileptologist went on to increase the frequency as time passed by. Right...

Created By: yumiko | 04/2017 | 2 Comments

My 10 year-old daughter has Epilepsy. She has had seizures twice in the past and both of them were at night.
I have been monitoring her at night using a baby monitor but it has been...

Created By: rrdutt | 03/2017 | 1 Comment

Hello...I'm fairly new to this site since yesterday..I got diagnosed in my 20's. I'm 41 now and life has been very hard as I'm sure many of you know. I haven't driven...

Created By: Bluedaisy383 | 03/2017 | 2 Comments

My son is 6 and has run the gammet of medications, yet still have 20+ seizures a day. We have an appointment on April 12th to discuss the VNS or the Ketogenic diet. In my research, it seems that...

Created By: ddca1990 | 03/2017 | 2 Comments

Has anyone had to have their VNS taken out and if so why? I wish to heck up and down that I would NOT have got it! how about you others?

Created By: anzella_1267 | 03/2017 | 8 Comments

Hi everyone.

I'm looking for advice and stories of people who have had a temporal lobectomy. I'm still concerned because after 6 weeks from my surgery I'm still getting auras...

Created By: Lindsayelf | 03/2017 | 11 Comments

I am having VNS therapy done March 27th. Ive done my research and have watched the video they gave me about it. The only thing im nervous about anesthesia.
I know what side effects that may...

Created By: laphamsmith | 02/2017 | 1 Comment

My daughter is 11 years old and we are considering a left temporal lobectomy. Just wanted to hear others experiences who have had this done. How was recovering? Are you now seizure free? Still...

Created By: IngieT | 02/2017 | 4 Comments

I've had epilepsy since I was 6 and am now 30. I've tried many medications & I've had many doctors due to them moving to other states. My current neurologist is the only 1...

Created By: GetBackJack | 01/2017 | 0 Comments

Hello. I had a temporal lobectomy back in 2007. I think I get a complex partial seizure again once a month. I am thinking about a second operation. I would say they started again about 2009. So I...

Created By: GF70 | 01/2017 | 1 Comment

Is it possible to purchase your own hospital gowns before going to the hospital? Next month, I plan to go to the hospital to do an EEG test and that will require several days of laying the bed...

Created By: GetBackJack | 01/2017 | 1 Comment

Has anyone here become 100% seizure free after a second operation after a temporal lobectomy? I think my auras are complex partial seizures again now. It's hard for me to tell because there...

Created By: candio | 12/2016 | 1 Comment

Has anyone used the Embrace watch?

Created By: yair | 12/2016 | 1 Comment

im 29 and my doctor offered me this device so i have some questions,
how does it affect my voice ?
do i feel it ?
can it be a bother during sex ?

im talking about that...

Created By: audrobinson393 | 12/2016 | 1 Comment

Hey all,

I'm a 24 year old female, have had epilepsy since I was 7 years old and just this year got told I could be a candidate for surgery. I have gone through MRI's which have...

Created By: Mindraker | 12/2016 | 0 Comments

An article was posted about the security of pacemakers and their vulnerability to hackers. (See link below.)

Created By: Cynthia10 | 11/2016 | 3 Comments

Has anyone here had gamma knife done for mesial temporal sclerosis? I've read that there have been studies on it, but can't find where it can be done. If so, where did you have it done...

Created By: txalisa | 10/2016 | 0 Comments

My boyfriend began having seizures a few years ago. Originally doctors believed his seizures were caused by a tumor behind his right hippocampus, and so he had surgery to remove the tumor. Despite...

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