Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Surgery and Devices

Created By: brittany32893 | 09/2015 | 3 Comments

My name is Brittany, I am 22 years old and was diagnosed with temporal lobe epilepsy when I was 14. After taking several medications and none of them working I am scheduled to have both the Wada...

Created By: Katlynjwilson | 09/2015 | 0 Comments

 

I have had seizures since I was 13 and didn't know that's what they were and thought it was something weird I did. It was a dejavue, gastric rising and loss of awareness events. I had my...

Created By: Hope331 | 09/2015 | 1 Comment

Has anyone ever had surgery complications?  I'm in the waiting process now...I had depth electrodes put in my head in July and they had complications (angiogram, and bleeding around my brain), now...

Created By: zombie girl | 09/2015 | 3 Comments

This is going to sound silly but I got my vns implant 7 months ago and Ive noticed some changes in my body. Mainly a female question but it seems almost like the generator is pushing down on my...

Created By: pfincher@gmail.com | 09/2015 | 2 Comments

Hello,

    Has anyone on here had Temporal Lobe surgery at Tampa General Hospital by Dr. Fernando Vale?  They have confirmed that I am a canidate for this surgery and are setting me up an...

Created By: sisuson | 08/2015 | 1 Comment

Hello all, this is my first time posting to this forum. I am turning here for advice on selecting a hospital based on first hand experience from anyone that has had a similar proceedure as out son...

Created By: Hope331 | 08/2015 | 0 Comments

Hi everyone....I went into the hospital at the end of July for depth electrode surgery, then they sent me to rehab for a week or so....their were some complications, and I wasn't able to get the...

Created By: 2015jack | 08/2015 | 1 Comment
Created By: pfincher@gmail.com | 07/2015 | 2 Comments

Hello All,

  Two years ago I went through the testing to see if surgery was a possibility. They had determined that because I had activity on both sides that I was not. Well we have been...

Created By: ladybugg31186 | 06/2015 | 2 Comments

I am exactly 1 week postop from having my first VNS implant. It's horrible. That's all i can even manage to say.They had to turn it on immediatly following the surgery as i began having seizures (...

Created By: aprylle01 | 06/2015 | 1 Comment

I just wanted to tell a bit about my vns implant.  I had a vns lead revision 10 days ago.  I had a bit of an unusual complication that developed months after the origional implant surgery.  I...

Created By: GKhs4632340 | 06/2015 | 1 Comment

Hi everyone,

I had my epilepsy surgery four years ago.  Since then, I have been having powerful headache 24/7 to this day.  I have tried both prescription and over-the-counter pain killers...

Created By: hoohaahill@rocketmail.com | 06/2015 | 4 Comments

Hello, this is my first post. My 18 year old daughter will be getting a VNS device in August. We're concerned about side effects and if this will really help her. Does anyone have any thoughts to...

Created By: suzreg | 06/2015 | 2 Comments

Hi, i want to let people lnow about the possible side effect of the VNS.  My daughter had the hiccups for a year....  All, all night.  We ended up doing surgery to remove a tumor in her stomach,...

Created By: sabmother | 05/2015 | 3 Comments

Hi all! This is my first post here but i'm researching for my DH. He had surgery 15 years ago and he was fairly controlled with meds. Then last year he went toxic on his lamictal and had to go...

Created By: AngelaB. | 05/2015 | 3 Comments

Hi everyone. I had a VNS implant put in a couple of years ago. Recently, we noticed that the area around the implant is getting really hard & I now have a visible bump on my chest where the...

Created By: dlmy1978 | 05/2015 | 1 Comment

I was looking for others who have had a right temporal lobectomy with hippocampus removal due to brain damage caused by an encephalitis. My daughter became ill in 2012 because of an mosquito bite...

Created By: Matilda2014 | 05/2015 | 1 Comment

My daughter had frontal lobe epilepsy surgery 6th jan 2015 tonight 4 months later she has had a seizure is this normal or has the surgery been unsuccessful I'm devastated

Created By: Hope331 | 04/2015 | 2 Comments

Hi everyone, I have gotten mixed responses from people, but I really need to hear from those who have undergone surgery.....is surgery really worth it?  Do you feel it has benefited you and made...

Created By: Hope331 | 04/2015 | 0 Comments

Has anyone had a 2 step left temporal lobe surgery?  My neurologist is thinking, that my best option is a 2 step surgery.....the 1st surgery they would go in and put electrodes in my brain, wean...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P