Webinar on Caregivers and Heroes

Tuesday, November 30, 2021 - 12:00
Join us for an educational webinar Our Community Celebrates: Caregivers and Other Epilepsy Heroes

Webinar on Tuesday, November 30, 2021, 12:00 to 1:00 P.M. ET


Join us for an educational webinar Our Community Celebrates: Caregivers and Other Epilepsy Heroes, on November 30, 2021.

“Our Community Celebrates: Caregivers and Other Epilepsy Heroes”

  • Date: Tuesday, November 30, 2021
  • Time: 12 - 1 p.m. ET

In honor of National Epilepsy Awareness Month (NEAM) and National Family Caregivers Month (NFCM), on November 30th at Noon ET join Epilepsy Foundation for a candid conversation with two extraordinary caregivers of persons touched by rare epilepsies. Luke Rosen, a father of a daughter with KiF1A, and Tonya Nash, a mother of a son with Lennox-Gastaut, will discuss their families’ celebrations and challenges as our community celebrates caregivers and other epilepsy heroes.


Luke Rosen, Founder K1F1A.org

Luke Rosen and Sally Jackson founded KIF1A.ORG in 2016 following their daughter Susannah’s KIF1A diagnosis. In 2017 Luke left his career in film and television to accelerate the discovery of a treatment for Susannah and children like her. Luke’s mission is to forge efficient collaborations to rapidly discover a treatment for KIF1A Associated Neurological Disorder and other rare genetic diseases.

Tonya Nash, MPH, CHES®

Tonya Nash, MPH, CHES® is a public health consultant in the Metro Atlanta area with over 15 years of experience in both public and private sectors. Tonya is the mother of two autistic sons, one of which was also diagnosed with Lennox-Gastaut Syndrome, a rare form of epilepsy. She is passionate about advocating for underserved communities and communicating health information in a way that people from all backgrounds can understand.


Note: The views expressed here do not necessarily reflect the views of the Foundation. Presenters cannot address individual medical concerns and cannot provide individual advice.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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