From Denial to Helping Others

Ravi is sharing his eJourney about how he went from living in denial about epilepsy to helping others through a similar experience
By
Ravi Ghotra
Person with Epilepsy
Thursday, November 4, 2021

I was diagnosed with epilepsy when I was 14 years old after having a tonic-clonic seizure in my sleep. I had an EEG and the epileptologist looked me in the eye and said, "Ravi, you have epilepsy." Previously, I just shrugged these seizures off and went on with my life, so this was the first time I took them seriously. I was in denial and felt like an outcast. It took me a long time to accept my diagnosis.

I had focal impaired awareness seizures one to four times a day and I was not able to understand or speak during conversations. I had a tonic-clonic seizure nocturnally every three to four months. It turned out that I had a tumor in my left temporal lobe associated with language and comprehension.

It was small, everyday tasks that impacted me the most. For example, I was constantly worried about having a seizure in a formal setting, like when talking to a professor. I also worried about how people viewed epilepsy and seizures as a disability, and I was afraid I would be judged.

In 2017, I underwent tumor resection, and I have been seizure-free ever since!

I am a current graduate student studying to be an epileptologist. I look forward to using my experience and knowledge as a patient to build my career and give my future patients the best quality of treatment medically, mentally, and emotionally. I hope my story shows people with epilepsy that there is light at the end of the tunnel.

Contact Our Helpline

Reviewed by: 
Sara Wyen

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P