Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Bob is sharing his journey with epilepsy and how it makes his life unique
Person with Epilepsy
Prior to seizures, Bob didn’t have any health problems. He is sharing his 32-year journey with epilepsy and how it has made his life unique.
Sort by
Tracy's story
Parent of a Child with Epilepsy
Tracy shares her experience with sudden unexpected death in epilepsy (SUDEP) as a mother who lost a child.
Reagan Surgery Photo
Child with Epilepsy
Meet Stephanie's son Reagan. Reagan had brain surgery as a treatment for his seizures. He is currently seizure free with cannabidiol.
Parent of a Child with Epilepsy
Learn about Amanda and Pippa's journey with cCMV and epilepsy.
Child with Epilepsy
Meet Ryker, a four year old boy living with CACNA1A-related epilepsy.
Mason with mom
Parent of a Child with Epilepsy
Deavin's son lives with Doose syndrome. He shares his challenges and the strength they brought.
Hailey and Livy Scheinman (Twins) hugging.
Sibling of a Person with Epilepsy
Meet Hailey, a Marvel's Hero Project real-life hero, and president and CEO of the Epilepsy Foundation Kids Crew.
Emily's Clinical Trial Journey
Parent of a Child with Epilepsy
Diagnosed with infantile spasms as a baby, Emily tried a clinical trial for a better quality of life.
Nina Mago
Person with Epilepsy
When Nina faced misunderstanding in Uganda, she chose to fight back with education and awareness.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline