Hospitals and Clinics Opening Up- Share your questions/concerns

Submitted by epihelp on Thu, 05/21/2020 - 08:05

Hi everyone,

I hope you've stayed safe and are doing okay in the past few months. As restrictions around the US, and in other countries, are lifting, many hospitals and clinics are restarting in person visits, tests, or admissions to the hospital. Many epilepsy centers are opening up too for 'elective' admissions. This may include being admitted for testing to see if someone has epilepsy or to find out where seizures start with EEG monitoring. Testing to see if a person could have surgery may be done and some surgeries are also being scheduled.

Interested in sharing videos of seizures for education and awareness by Epilepsy Foundation?

Submitted by epihelp on Fri, 02/09/2018 - 10:08

Hi everyone,

The Epilepsy Foundation national office is making some new videos and updating educational programs with new footage of seizures. While simulated seizures with actors can be used at times, these are not the same as seeing a real seizure. The ideal is to have videos of different types of seizures that occur in real life situations, not just hospitals. 

If you are interested in helping with this project, here are a few tips of what we are looking for.

You live and learn

Submitted by web-site-admin on Fri, 11/17/2017 - 10:10
Unusually I am going to post on a forum but as I viewed Jon Snow’s interview on the Channel 4 news last night I thought it was time. All I’m hoping is that I can put some minds at rest. Firstly, living with epilepsy (sorry, I forgot to say that I had my first tonic clonic seizure when I was 9, I am now ahem........46) isn’t easy. It can be made easier, and strange as it may sound there can be positives. I want to say before anything, to parents and children no one is at fault. We try to rationalise everything in life, you will be going around in circles getting nowhere if you try to.

Sleepwalking and seizures (med reccs)

Submitted by web-site-admin on Wed, 11/15/2017 - 22:11
Hello, 31 yo male here, currently on Depakote ER 1000mg 2x a day. My seizure pattern changed a few months ago, I'm having seizures in my sleep now, accompanied by sleepwalking episodes. Usually I'll just put on clothes or use the restroom before returning to bed. An recommendations for medicine? Is there something better for nocturnal seizures? I want some insight from the community before seeing my doc.

Are Seizures meds making me feel psycho?please tell me I’m not alone

Submitted by web-site-admin on Thu, 10/19/2017 - 16:53
I’m new, 32 year old single mom with two kids. Librarian/farmer/ photographer. Since I started having seizures I lost my job due to not being able to drive. I was just diagnosed with simple/complex partial seizures. I was very resistant to try the meds but after a lot of pressure from doctors and family and the fact that I need to work I started Zonisamide Monday night, smallest dose 100mg. It didn’t seem so bad. Tuesday I started feeling really dizzy, I felt like Alice in Wonderland. I felt big and small and everything around me was moving and vibrant and it made me nauseated.

A poem about coping with seizure anxiety

Submitted by web-site-admin on Wed, 10/18/2017 - 00:03
How to Fear, How to Live Plato said courage is knowing what not to fear. I think courage is knowing how to fear. How to fear but smile. How to fear but work. How to fear but play. How to fear but live life, and live it so well that sometimes you forget that you fear. To love life so much that it is worth relishing every moment of it, despite the fear, and to keep living it so deeply that the fear slides to the shadows at the end of your day and avoids the brilliant sun that is your undying determination. But sometimes At night Or at work Or even at play You remember, and you begin to fear. A

Share your story for International Epilepsy Day!

Submitted by epihelp on Tue, 02/02/2016 - 20:38

The second Monday in February is International Epilepsy Day. Please share your story, offer words of wisdom, or message for others living with epilepsy. Stay tuned to the Epilepsy Foundation's social media outlets - especially Twitter and Facebook. Please help us spread the word by reposting and retweeting messages about epilepsy!

Thank you all in advance!

Epihelp

Subscribe to