Awareness

Submitted by web-site-admin on Sun, 11/03/2013 - 14:01

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have much experience with this type of thing. So,
PLEASE feel free to join, add other helpful links, share your story, and
even share pictures. On this page, I have shared pictures of some of
the damage done by seizures and the medicine side effects for the
non-believers. Please feel free to write and share.
https://www.facebook.com/seizemyepilepsy  Thank you!

My Journal in picture and living color

Submitted by web-site-admin on Sun, 11/03/2013 - 14:00

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have much experience with this type of thing. So,
PLEASE feel free to join, add other helpful links, share your story, and
even share pictures. On this page, I have shared pictures of some of
the damage done by seizures and the medicine side effects for the
non-believers. Please feel free to write and share.
https://www.facebook.com/seizemyepilepsy  Thank you!

My story and medication issues

Submitted by web-site-admin on Sun, 11/03/2013 - 13:58

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have much experience with this type of thing. So,
PLEASE feel free to join, add other helpful links, share your story, and
even share pictures. On this page, I have shared pictures of some of
the damage done by seizures and the medicine side effects for the
non-believers. Please feel free to write and share.
https://www.facebook.com/seizemyepilepsy  Thank you!

Awareness month

Submitted by web-site-admin on Sun, 11/03/2013 - 13:57

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have much experience with this type of thing. So,
PLEASE feel free to join, add other helpful links, share your story, and
even share pictures. On this page, I have shared pictures of some of
the damage done by seizures and the medicine side effects for the
non-believers. Please feel free to write and share.
https://www.facebook.com/seizemyepilepsy  Thank you!

Epilepsy Month Awareness

Submitted by web-site-admin on Sun, 11/03/2013 - 13:55

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have much experience with this type of thing. So,
PLEASE feel free to join, add other helpful links, share your story, and
even share pictures. On this page, I have shared pictures of some of
the damage done by seizures and the medicine side effects for the
non-believers. Please feel free to write and share.
https://www.facebook.com/seizemyepilepsy  Thank you!

Changes in emotional status and/or change in self awareness following seizures.

Submitted by web-site-admin on Sun, 11/03/2013 - 13:37

I am a 42-year-old female.  I experienced my first grand-mal seizure 12 years ago.  For several years previous to that, I had experienced what I referred to as "skipped record syndrome", where I would have auras and difficulties with words or speech, sometimes also combined with a jerking motion of my hands.  Over the last 12 years, I have had occasional seizures...sometimes going as long as a year without any episodes, and during other times having as many as 6 seizures in a month.  Last week I had my first seizure in more than a year.  Following a seizure, I have occasionally experienced

Am I off and alone here? Simple Partial Seizures

Submitted by web-site-admin on Sun, 11/03/2013 - 09:46

I only see my neurologist once every 6 months or so.  I'm happy about that.  The reason why is because though she diagnosed me as having Simple Partial Seizures every time I mention my symptoms she tells me it is psychiatric-based.  I do have a psychiatric condition, but I know A LOT about it and the symptoms I describe to her are not related to my mental illness.  So, I surf the net a lot and try to see if anyone else has what I believe is "seizure activity".  I find all of my symptoms plastered over one website after another.

Here are some of the symptoms I've had:

Hiccups on Lamical?

Submitted by web-site-admin on Sat, 11/02/2013 - 19:54
Ever since I started Lamictal last year, I've experienced hiccups EVERY day. At first, I thought it was just a normal phase but after counting 50 hiccups a day I realize its NOT normal. They do increase after meals, but the typical "drink water, hold your breath, etc." doesn't work. Anyone else have A LOT hiccups on Lamictal??

VNS

Submitted by web-site-admin on Sat, 11/02/2013 - 15:10

HI

I have a VNS as well

I got mine on sept 20 of 07 and it got replaced on august 25th of 10.

I was having 10-12 szs a day almost every day and I was slipping downhill s little every day.

I was not a candidate for brain surgery so they putrt in a VNS instead.  I had very bizarre behaiour as a child and they all said it was a behaiour problem when it wasnlt.  it was Complex Partial szs that were untreated and never caught.

I walked around with them like that thru grade school, middle school, HS and part of college.

Self driving cars

Submitted by web-site-admin on Sat, 11/02/2013 - 10:58
Do you think self driving cars will be available in the next five years? What a life-changer that would be; people with epilepsy being more able to date, get to work more easily, accomplish daily errands, check out new places; leading more independent and less isolating lives. Is it a fantasy, or do you think these cars will really be out in the near future?
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