about 4 years ago I had a 13 yr old that died from JME. she was having more than 200 abcsence szs a day along with some T/Cs and myoclonic szs as well.
no one could get a handle on it it was so bad. she was inn an dout of EMUs and considered for sugery that was a no-go and then had a VNS. that gave osme elifebut did nothing to stop the petit mals.
she went form doctor to doctor and it just could not be slowed down.