Epilepsy.com Launches Seizure Preparedness: First-of-its-Kind Resource for Self Management, Family Knowledge and Faster Response

Business Wire via NewsEdge Corporation :

RESTON, Va.--(BUSINESS WIRE)--June 13, 2007--The launch of a first-of-its-kind Seizure Preparedness on-line resource that introduces practical skills, tools and essential information for seizure management was announced today by The Epilepsy Therapy Development Project (Epilepsy TDP), the non-profit parent organization of epilepsy.com. The new comprehensive epilepsy management resource is freely available to the public and healthcare professionals by visiting the epilepsy.com website (http://www.epilepsy.com). Designed to prepare people with epilepsy and their families or caregivers with the ability to address seizure emergencies - at home, in the office, at children's summer sessions, in school - the site provides vital information to help patients and families develop a seizure preparedness plan, with the goal of maximizing faster response and safety. For the first time, people living with epilepsy will have access to a broad array of physician-and parent-reviewed information addressing the "how-to's" on issues ranging from managing seizures to choosing a summer camp for children with epilepsy.

"Seizure Preparedness" offers the most current, multi-layered epilepsy treatment and management information, as well as informed opinions, that have been contributed by epilepsy professionals to encourage best practices in patient care. Supported by an unrestricted grant from Valeant Pharmaceuticals North America and other donors to Epilepsy TDP, this initiative provides a unique resource for people touched by epilepsy. "Seizure Preparedness" was co-authored by Steven C. Schachter, MD, Professor of Neurology at Harvard Medical School and Editor-in-Chief, epilepsy.com; and Patricia O. Shafer, RN, MN, Resource Specialist, epilepsy.com.

"Epilepsy is a complex condition with multiple issues and risks, and its management is the responsibility of each person touched by these issues, in addition to the professionals," said Ms. Shafer. "The new Seizure Preparedness section was designed to teach skills that will help people partner with their health care team and manage their seizures wherever they occur. The approach focuses on the central role of people with seizures and their caregivers," she said.

Dr. Schachter added, "By including emergency information not seen before and a broad array of tools and resources, the site provides a practical approach to managing seizures that emphasizes preparation, prevention, and teamwork. The goal is to empower people and their caregivers to become informed, proactive members of their own health care team."

The new comprehensive section is written in easy-to-understand modules, providing a clear outline of issues related to the management of epilepsy. Some highlights include:

  • Understanding Seizures and Emergencies (http://www.epilepsy.com/epilepsy/understanding_seizures.html)
  • Tracking and Treating Seizures (http://www.epilepsy.com/epilepsy/tracking_seizures.html)
  • Responding to Seizures (http://www.epilepsy.com/epilepsy/responding_seizures.html)
  • Developing Preparedness Plans (http://www.epilepsy.com/epilepsy/preparedness_plans.html)
  • Adapting Plans to Summer Camps (http://www.epilepsy.com/epilepsy/plans_summer_camps.html)

Developing Preparedness Plans

The "Developing Preparedness Plans" section, for example, offers an on-line, step-by-step tool for patients and parents to create their own seizure plan. It highlights the importance of organizing personal information, tracking seizures, managing seizure triggers and medications, and recognizing potential emergency situations. It emphasizes the importance of reviewing plans with a physician and knowing how to respond appropriately to prevent emergency situations. Plans can then be used to help caregivers and people with seizures to be prepared.

Adapting Summer Camp Plans

The timely "Adapting Plans for Summer Camp" section addresses the issues and challenges that parents of children with epilepsy must consider in the camp search process; it then helps in tailoring a preparedness plan for this special situation. It includes advice on choosing and evaluating camps and preparing camp staff for seizure management and safety, as well as a list of camps specifically for those with epilepsy.

In addition, a resource kit containing downloadable and printable tools is associated with each module including seizure action plans that can be easily tailored to individuals of all ages, medication schedules, seizure calendars, forms to help prepare for camp, and other resources to make working with health care professionals easier.

Providing Information to Patients and Practitioners

"The new Seizure Preparedness section is a rich source of information to guide patients and practitioners and help them understand, prepare for and know what to do to manage seizures and ideally prevent emergency situations," said Dr. Schachter. "We are very pleased to offer such a valuable resource, which also will be of great help to medical professionals and epilepsy specialists. Seizure Preparedness furthers the mission of epilepsy.com by providing compelling information to help enable optimal quality care and health management for everyone whose lives are touched by epilepsy."

"The faster and more effectively a person with epilepsy can be assisted in an emergency situation, the better it is for the patient," said Warren Lammert, Co-founder and Chairman, Epilepsy TDP. "I have learned from my personal experience that knowing what to do and how to respond to a seizure has immeasurable value for the person with epilepsy and the people who are close to him or her. I would like to thank our authors, contributors, Valeant Pharmaceuticals North America and donors for making the Seizure Preparedness initiative possible."

About epilepsy.com

Epilepsy.com is an online resource that was developed by the Epilepsy Therapy Development Project to provide in-depth information and community for people living with epilepsy. The mission of epilepsy.com is to inform, empower and connect patients, families and caregivers facing newly-diagnosed epilepsy and those struggling with epilepsy that has resisted the usual treatments. Founders and editorial board members of epilepsy.com include leading clinicians and researchers in the field of epilepsy from leading medical institutions. For more information, visit http://www.epilepsy.com.

About the Epilepsy Therapy Development Project

The Epilepsy Therapy Development Project is a non-profit organization whose mission is to advance new therapies for people living with epilepsy. Founded in 2002 by a group of parents, distinguished physicians and researchers, the Epilepsy Therapy Development Project supports the commercialization of new therapies through direct grants and investments in promising academic and commercial projects. The organization has raised over five million dollars towards its mission. For more information, visit http://www.epilepsytdp.org.

CONTACT: The Epilepsy Therapy Development Project Kim Macher, 540-687-8077 or BCC Partners Susan Pietropaolo, 845-638-6290 or Nan Foster, 415-307-6955


Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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