Epilepsy.com/Professionals Launches Women's Health Site for Healthcare Providers to Support Optimal Care of Women with Epilepsy

Business Wire via NewsEdge Corporation :

Available Addressing Women of All Ages Business Editors/Health/Medical Writers RESTON, Va.--(BUSINESS WIRE)--Oct. 24, 2006--The Epilepsy Therapy Development Project (ETDP) today announced the launch of a new women's health site on the Epilepsy.com/Professionals website for physicians and healthcare providers, supporting optimal care for women of all ages with epilepsy. The new site, developed by leading epilepsy health practitioners and investigators, provides age- and situation-specific health information and physician tools relevant not only to epileptologists and neurologists, but also to general practitioners, endocrinologists, ob-gyn professionals and others treating women with epilepsy. This addition to the professional site also fulfills the objectives of the parent organization - the Epilepsy Therapy Development Project - providing current, multi-layered epilepsy treatment and management knowledge, as well as informed opinions contributed, reviewed by, and shared among professionals in the epilepsy field, to support best practices in patient care and to provide a unique resource and community for people touched by epilepsy.

"The women's health section is the most comprehensive discussion of women's issues in epilepsy available to all healthcare professionals on the internet," said Steven C. Schachter, M.D., Professor of Neurology, Harvard Medical School, Director of Research, Department of Neurology, Beth Israel Deaconess Medical Center, and Editor-in-Chief, Epilepsy.com. "In particular, an easy-to-understand discussion section explains issues such as the effect of hormones and the menstrual cycle on seizures, and bone health and fertility issues faced by women with epilepsy. This new section accomplishes our goals of disseminating compelling information to a broad spectrum of clinicians to help them deliver the best quality care to their patients with epilepsy."

Many of the challenges facing women with epilepsy from menarche through menopause are unique. In addition to the challenge of staying current with new developments in the field of epilepsy, practitioners need to consider numerous factors that relate to the reproductive status of their female patients. With the aim of bringing the most current information on all relevant aspects of women's health to one site as a one-stop epilepsy education resource, this new section provides a broad spectrum of peer-reviewed women's health topics and a multi-faceted discussion guide (see http://professionals.epilepsy.com/page/women_guide.html). The guide introduces the major issues faced by epileptologists, neurologists, pediatricians, general practitioners, nurses, social workers, and other health care professionals caring for women with epilepsy. The discussion guide covers topics relevant to women of all ages including the reproductive years, those planning to conceive, women who are pregnant and beyond childbearing years, such as:

  • Relationship between Hormones and Epilepsy
  • Epilepsy and the Menstrual Cycle
  • Impact of Epilepsy on Sexual and Reproductive Issues
  • Pregnancy Risks
  • Fetal and Postpartum Risks
  • Parenting Issues and Safety
  • Perimenopause and Epilepsy
  • Hormone Replacement Therapy
  • Bone Health

In addition, a downloadable checklist, designed as a companion to the guide, translates knowledge into a clinical practice tool, ensuring that practitioners cover these important issues with patients (see http://professionals.epilepsy.com/page/women_checklist.html).

"We are very pleased to be launching this valuable resource for epilepsy professionals who share many of the frustrations that their patients experience when struggling to navigate complex women's health issues," said William Braunlich, President, the Epilepsy Therapy Development Project. "The founders of Epilepsy.com envisioned an ever-growing website with comprehensive information and interaction for the entire epilepsy community when the site was introduced in November of 2003. This women's site is another important addition fulfilling that mission."

Understanding Epilepsy in Women

Epilepsy is a multi-layered disorder complicated by numerous co-morbidities and representing an unmet need with a shortage of successful research and treatment options. There are 2.3 million epilepsy patients in the U.S.* More than half are women and girls. While available treatments help many people with epilepsy, they are ineffective for one million Americans, approximately half of whom have persistent seizures under existing therapies, and the remainder experience severely debilitating treatment side effects. For women, these side effects are compounded at different ages by issues with menstruation, fertility, pregnancy, fetal health, bone health, and others.

About Epilepsy.com

Epilepsy.com is an online resource that was developed by the Epilepsy Therapy Development Project to provide in depth information and community for people living with epilepsy. The mission of Epilepsy.com is to inform and empower patients, families and caregivers facing newly diagnosed epilepsy and those struggling with epilepsy that has resisted the usual treatments. Founders and editorial board members of Epilepsy.com include leading clinicians and researchers in the field of epilepsy from such renowned institutions as Harvard Medical School, New York University School of Medicine, Yale University School of Medicine, and the University of California, San Francisco Medical Center. For more information visit http://www.epilepsy.com.

About the Epilepsy Therapy Development Project

The Epilepsy Therapy Development Project is a non-profit organization whose mission is to advance new therapies for people living with epilepsy. Founded in 2002 by a group of parents, distinguished physicians and researchers, the Epilepsy Therapy Development Project supports the commercialization of new therapies through direct grants and investments in promising academic and commercial projects. The organization has raised over five million dollars towards its mission. For more information visit http://www.epilepsytdp.org.

*Epilepsy Foundation

CONTACT: The Epilepsy Therapy Development Project Kim Macher, 540-687-8077 or BCC Partners Susan Pietropaolo, 845-638-6290 or Nan Foster, 415-307-6955 KEYWORD: VIRGINIAINDUSTRY KEYWORD: CONSUMER/HOUSEHOLD MEDICAL BIOTECHNOLOGY INTERNET E-COMMERCE PRODUCTSOURCE: Epilepsy Therapy Development Project (ETDP)

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
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