New Epilepsy.com Site Empowers Community and Connects Those Living With Epilepsy

New Features Include Seizure Diary, Enhanced Patient Resources, Integrated Wiki, Blogs, Forums and Individual and Group Home Pages

Reston, VA, November 14, 2007— The Epilepsy Therapy Project, a non-profit organization dedicated to advancing new therapies for people living with epilepsy, today unveiled the new epilepsy.com website. The updated epilepsy.com features expanded social networking and community space, personal epilepsy management tools and integrated videos to complement the more than 3500 pages of in-depth editorial content created by leading epilepsy specialists to help patients and physicians better treat and control seizures.

A highlight of the new epilepsy.com site is a management tool that allows patients and families to maintain a complete electronic record of issues related to living with epilepsy. Patients will be able to keep track of seizures, medications and other epilepsy treatments, as well as side effects and other health-related observations. They also will be able to maintain a database of healthcare contacts and medical appointments, and receive automatic notifications when their prescriptions need to be refilled.

“We are introducing an extraordinary management resource to the epilepsy community at no cost. Patients and family members can access this user-friendly resource to aid them in managing their condition while providing their physicians with comprehensive information to fine tune their treatment,” said Joyce Cramer, President of the Epilepsy Therapy Project, and Associate Research Scientist, Yale University School of Medicine. “We hope this will help patients have more satisfactory outcomes with the medicines and therapies that are available today. Particularly, for children with epilepsy, parents will be able to track which regimens are working as their children mature and require new treatment strategies.”

Epilepsy Patients and Caregivers Tell Their Stories

The new www.epilepsy.com offers state-of-the-art video, access to users with similar interests, as well as a place where members and groups can create their own web pages to relay personal stories, upload pictures, write blogs or even start their own podcasts. The site, which includes thousands of pages of in-depth treatment, educational and patient-generated content, has been simplified to allow user-friendly access across all audiences, lay and professional.

“Our goal is to make this powerful resource easily available to patients and anyone who is involved in treating or caring for someone with epilepsy. By facilitating discussion among patients, peers and professionals, we can help overcome the feeling of isolation that so often comes with the diagnosis and continue to make progress in developing new therapies,” said Steven C. Schachter, MD, Professor of Neurology at Harvard Medical School and Editor-in-Chief, epilepsy.com. “We have a unique blend of up-to-date content, written and reviewed by medical professionals, and visitor-generated content, including chat rooms, which are monitored by an epilepsy nurse specialist. We invite everyone to explore the new features and wealth of information on epilepsy.com.”

“With this re-launch of epilepsy.com, we have added a new wiki dimension to every page of our website. We have also used new technology to bring relevant blog and community forums discussions alongside our edited content. We are inviting our community of patients, families and professionals to join with our epilepsy.com staff and editors in helping to build out our content on topics of interest to the epilepsy community. We believe this marriage of thousands of pages of edited professional content from epilepsy.com and its experts with the broad learning and real world insights of our community makes the new epilepsy.com a one-of-a-kind medical resource,” said Warren Lammert, Co-founder and Chairman, the Epilepsy Therapy Project. “Introducing new social networking and wiki features to the website in addition to new tools for managing epilepsy, supports our goal of empowering people and caregivers living with epilepsy. I want to thank all of the epilepsy.com staff and editorial contributors as well as our web development partner Zoomedia, Inc. and its project team for their tireless and outstanding work on this significant project.”

Separately, the Epilepsy Therapy Project and Zoomedia, Inc. announced that epilepsy.com was the recipient of a 2007 eHealthcare Leadership Silver Award in the Consumer Disease-Focused Site category. Winners, chosen among over 1,100 entries, were recognized during a special presentation at the Eleventh Annual Healthcare Internet Conference held November 4 - 6, 2007 in Las Vegas.

About epilepsy.com

epilepsy.com is an online resource providing in-depth information and community for people living with epilepsy and is the home of the Epilepsy Therapy Project . The mission of epilepsy.com is to inform, empower and connect patients, families and caregivers facing newly-diagnosed epilepsy and those struggling with epilepsy that has resisted the usual treatments. Founders and editorial board members of epilepsy.com include leading clinicians and researchers in the field of epilepsy.

About the Epilepsy Therapy Project

The Epilepsy Therapy Project is a non-profit organization whose mission is to advance new therapies for people living with epilepsy. Founded in 2002 by a group of parents, distinguished physicians and researchers, the Epilepsy Therapy Project supports the commercialization of new therapies through direct grants and investments in promising academic and commercial projects. The organization has raised over six million dollars towards its mission. Learn more at www.epilepsy.com .

About Zoomedia

Founded in 1994, Zoomedia, www.zoomedia.com, provides life science clients with a full range of communications and marketing services, from analysis through strategic planning, implementation and production. We accelerate client success through intelligent communication initiatives that directly support business goals. By developing and implementing the right communication program at the right time, Zoomedia ensures that your company rises above the noise of what is an already crowded and fast growing market.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
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