Learn about Latest Updates in Telemedicine, Genetic Testing, SUDEP, and Cannabidiol

Thursday, August 27, 2020


A virtual community day organized by, and for, people affected by epilepsy to support them and their loved ones on their epilepsy journey. This year’s virtual event offers the latest updates and a chance to connect with the Epilepsy Foundation, healthcare providers, and others affected by epilepsy. Topics to be covered include:

  • Telemedicine: How we got here and what’s next
  • Genetic testing and epilepsy
  • Sudden Unexpected Death in Epilepsy (SUDEP)
  • Cannabidiol and making informed choices
  • Getting involved and making change in your community


August 29 at 11 a.m. EST


Register at: https://one.bidpal.net/innovationaction2020/welcome


Featured speakers include (please see agenda for list of all speakers):

  • Laura Thrall, President & CEO, Epilepsy Foundation
  • Victor and Libby Boyce, The Cameron Boyce Foundation
  • Kim Nye, TESS Research Foundation, President and Co-Founder
  • Miles Levin, filmmaker


According to the World Health Organization, epilepsy is the most common serious brain disorder worldwide with no age, racial, social class, national or geographic boundaries. The U.S. Centers for Disease Control & Prevention (CDC) estimates that 3.4 million people in the United States are affected by epilepsy. It is the underlying tendency of the brain to produce seizures which are sudden abnormal bursts of electrical energy that disrupt brain functions. 


With a network of nearly 50 partners throughout the United States, the Epilepsy Foundation is leading the fight to overcome the challenges of living with epilepsy. The Foundation connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid. For more than five decades, the Epilepsy Foundation has shone a light on epilepsy to promote awareness and understanding, and to advocate for laws that matter to people with epilepsy, while also funding $68.7 million for epilepsy research and supporting 3,091 epilepsy investigators and specialists in their early careers. Over the past 18 years, in partnership with the CDC, the Epilepsy Foundation has helped to improve access to care for people with epilepsy, expanded its digital reach and online resources in homes across the country, and trained more than 500,000 school and community personnel in how to recognize seizures and administer seizure first aid. The Foundation has also assisted more than 123,470 people through its 24/7 Helpline in the past five years, and continues to focus on innovation, new therapies, community services, advocacy and education as key priorities. To learn more visit epilepsy.com or call 1.800.332.1000. Follow us on Facebook and Twitter

Contact Name: 
Jackie Aker
Contact Phone: 
(310) 846-9272
Contact Email: 

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline