The ELHS Community

• Epilepsy Foundation of Arizona
  • Phone: (602) 282-3515
• Epilepsy Foundation Eastern Pennsylvania
  • Phone: (215) 629-5003
• Epilepsy Foundation Great Los Angeles
  • Phone: (310) 670-2870
• Epilepsy Foundation Ohio
  • Phone: (937) 233-2500
• Epilepsy Foundation Orange County
  • Phone: (657) 315-4100
• Epilepsy Foundation New England
  • Phone: (617) 506-6041
• Epilepsy Foundation Texas - Houston/Dallas-Fort Worth/West Texas
  • Phone: (713) 789-6295
• Epilepsy Foundation Washington
  • Phone: (206) 487-5251

Partners

The Epilepsy Foundation is proud to work with the following partners in this effort.

The Centers For Disease Control And Prevention (CDC)

This network is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $240,000. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.

James M. Anderson Center For Health Systems Excellence (Cincinnati Children’s)

The James M. Anderson Center for Health Systems Excellence was established in 2010 to dramatically expand work being done in transformational improvement. Cincinnati Children’s is committed to providing the best outcomes, the safest care for children and families, and applying all that is learned through research. Within Cincinnati Children’s, the center promotes, facilitates and supports a wide range of improvement initiatives. At the same time, Cincinnati Children’s hopes to be an inspirational model – or exemplar – for others who are beginning or are well along the way on the same journey.

National Association Of Epilepsy Centers

The National Association of Epilepsy Centers (NAEC) is a non-profit association with a membership of more than 240 specialized epilepsy centers in the United States. NAEC was founded in 1987 by physicians committed to setting a national agenda for quality epilepsy care. NAEC published its first iteration of its Guidelines for Essential Services, Personnel, and Facilities in Specialized Epilepsy Centers in 1990. The Association continues its work to develop standards of care and promote their adoption by epilepsy centers through its accreditation program. NAEC pursues an active agenda, educating public and private insurers, policymakers, and government officials about the complexities of and need for patient access to specialized epilepsy services.

To connect with ELHS and learn more about our partners, email ELHS@efa.org.

Patient-Centered Outcomes Research Institute (PCORI)

ELHS is one of four PCORI Learning Networks, which received coaching support from the James M. Anderson Center for Health Systems Excellence at Cincinnati Children’s Hospital Medical Center.

QI Science Leadership Consortium

The objective of this Consortium is to discuss the landscape of Quality Improvement (QI) Science efforts in epilepsy and efforts in leveraging data to establish and evaluate healthcare utilization, health economics and quality outcomes measures. The Consortium has the ability to inform areas of value in ELHS work, and to catalyze ELHS work based on priority areas.

The Consortium convenes on a semi-annual basis at the QI Roundtable to present the work done and future work planned to date, to share where the network believes value lies, and to gather input from the supporting stakeholders on where they see priorities not yet identified or resources yet untapped.

If you are interested in participating in the QI Science Leadership Consortium, please contact Corporate Philanthropy Officer Nicole Murray, nmurray@efa.org.

Rare Epilepsy Network

The Rare Epilepsy Network, or REN for short, is a collaboration between the Epilepsy Foundation, RTI International, Columbia University and many different organizations that represent patients with a rare syndrome or disorder that is associated with epilepsy or seizures.

Research

The ELHS model emphasizes that research is done in collaboration with, not for or about, people living with epilepsy and their families. The voices of people are at the core of EHLS.

Across the ELHS network, individuals with epilepsy, parents, caregivers, clinicians and researchers will work together to identify research questions, design and carry out studies to answer important questions about epilepsy, and to implement what they've learned.

Consistent with the mission of the EHLS, research will focus on improving the health and care of people with epilepsy. With this as the driving force behind the work of EHLS, research can be subdivided into four interdependent areas of focus:

Quality improvement (QI)
Comparative effectiveness/Epidemiology
Clinical trials
Laboratory research
To connect with ELHS and learn more, email ELHS@efa.org.