Watch the webinar recorded on November 14, 2017.
How can we #AimForZero Seizures and SUDEP?
It’s a Difficult Conversation
Talking about early death in epilepsy, particularly SUDEP, is hard for everyone.
- It is scary and no one wants to hear about what can go wrong or if a person can die.
- The numbers show it is rare – about 1 in 1,000 people with epilepsy may die each year from SUDEP. But even 1 death is too many.
- There is still so much we don’t know about what causes SUDEP. It’s hard to know who is at risk and when to talk about it.
But we MUST talk about SUDEP!
- Not letting people know their risks or what they can do is not okay.
- Waiting until after it has happened is not okay.
Talking about SUDEP is a critical part of epilepsy care. Everyone should know what it is, and what it is now. Only by talking about it can people learn their risks and take action to improve seizure control, and ideally lessen their risks of SUDEP.
Dr. Daniel Friedman, epilepsy.com’s SUDEP Editor, and Wendy Miller PhD, RN, CCRN of Indiana University, discuss the latest thinking on SUDEP and the importance of talking about it and knowing your risks. Perspectives and tips from family member(s) who lost a loved one to SUDEP are also included in this webinar.
About Our Speakers
Dr. Friedman is an assistant professor of neurology and an epileptologist at the New York University Langone Comprehensive Epilepsy Center. His clinical interests include the surgical treatment of epilepsy. He also has active research interests in understanding epilepsy-related mortality, including prevention strategies, and methods to improve trials of epilepsy therapy. He is the SUDEP editor for epilepsy.com and a member of the Epilepsy Foundation’s Professional Advisory Board.
Dr. Wendy Miller is an assistant professor of nursing at the Indiana University School of Nursing, as well as an adult health clinical nurse specialist. In addition to being a person living with epilepsy, Dr. Miller has a program of research devoted to improving the self-management and quality of life of people with epilepsy.