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Hormones and epilepsy

Sun, 10/29/2017 - 01:28
Hi everyone! I didn't know how to edit my previous post since I made a mistake on some dates I had mentioned. My epilepsy journey is kind of long and complicated. It all started at 13 years old (less than a year after starting my period) when I would lose my memory for a day and was aware of my name, surroundings but would forget very short term things like the name of someone I just met. I went to a neurologist and was diagnosed with epilepsy and prescribed Topomax. The medication gave me twitches and jerks and wasn't helping whatsoever. I was disgnosed with juvenile myclonic epilepsy. After a year of taking that I was prescribed Keppra. It seemed to be helping a lot better except for when I had my seizures it was grand mal without any twitching. My seizure types changed for the worse. Some of my trigger seizures include lack of sleep and very loud music. After seeing an herbalist I decided to take the natural route and I had never felt better in my life. With the help of herbs and diet changes I was able to reduce my Keppra medication from 1250 to 500 mg and was seizures free for 22 months. About 2 months ago I underwent surgery to remove an ovarian cyst and experienced 3 seizures in a matter of 45 days, something that never happened. All my seizures took place either on my period or when I was ovulating. My surgeon warned me that my hormones were going to be wack until a few cycles. I'm starting to think my seizures are hormonal and due to hormonal imbalances. Have any of you ladies experienced this? Does anyone have success battling this? Any input is appreciated!

Comments

I want to add that I had not

Submitted by Tinafair10 on Fri, 2017-12-15 - 10:28
I want to add that I had not planned my pregnancy. My pharmacist told me that it was possible the seizure meds had diluted the birth control I was taking. My son was born 6wks premature and was in the NICU for two weeks after he was born, in order to back him off of my seizure meds. I cried over it and felt so guilty for putting him through it, but the doctors reassured me that it wasn't my fault. It was just a medical issue to take care of.

Hi, I'm Lorraine and I also

Submitted by LoriNorris on Sun, 2019-05-26 - 08:29
Hi, I'm Lorraine and I also have epilepsy. There are a lot of things we have in common especially having seizures occurring during ovulation and periods. I want to write a book that focuses solely on all types of women with epilepsy.  If you want to talk more please feel free to email me at lorraine.malek27@gmail.com. I look forward to hearing from you. 

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