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15 year old daughter having seizures Psuedo or not Psuedo???

Sun, 05/21/2006 - 00:46
Hi all I am new to this site and looking for some insight. My 15 year old daughter started having seizures ( back & neck rigid and full body shaking/jerking) on April 7th. After two trips to the ER and a clear EEG I was told that they were psuedo fits. After hearing the DX she told me that she was sexually abused for the past year by her father. She is in counseling but the seizures are still coming 2-6 a day. We went to a neurologist this week who started her on 25mg of Topamax and told me that it still could be epilepsy and that he wants to rule it out. So here is my question, from what I can find psuedo's are brought on by panic attacks and pain will make them stop. I am seeing these seizures happen with no other signs. She gets light headed or dizzy if she is standing when they hit and will faint, her left arm has started to go rigid with the hand curled upwards several times a day, sometimes before the seizure starts but always during and afterwards. If they are fairly strong seizures she can't speak for quite awhile afterwards and then for an hour or so when she does talk you can't understand her. I have pressed on her nail bed and the seizures will stop, sometimes the will come right back a few minutes later. So does this sound remotely like epilepsy? The doc is running an MRI EEG and some test on the brain stem and the eye nerves next month. I am so confused. Will any of the true epileptic seizures stop with pain being inflicted or would that only occur with psuedo? The doc also said that psuedo's are commonly seen in epilepsy patients? If anyone can lend any thoughts I would be very appreciative.

Comments

Re: 15 year old daughter having seizures Psuedo or not Psuedo???

Submitted by rhutchi2 on Wed, 2008-03-19 - 23:03

Oh my gosh!!  It's like a living nightmare that came out of nowhere. Begining February 13th 08 our 16 year old woke to mild chest pain.  I had to leave work as she was able to get an appointment right away. 

She had been previously diagnosed with Asthma so I expected something along those lines being the problem.

When the nurse removed the blood pressure cuff from her right arm, her arm began a cycle of tightening and loosening which caused her arm to jerk as though her funny bone was hit.

The doctor suggested we get a lab on her to see if she had a calcium level problem.  Test came back negative but she started moving in her right leg, then both sides, then both sides and head with eyes rolling to back of head.  Full body convulsions.  Repeatedly for a couple hours with the convulsions lasting about a minute or so, but happening every 5 minutes.  She was unresponsive to Adivan, morphine, something else I can't remember, which gave her a burning sensaation through her entire body for a few minutes.  Nothing worked to reduce the seizures.  After spending seven days in the hospital they diagnosed her with psuedo seizures. 

She had blood work, MRI, Cat scan, EEG, and all came back clear.

The physician at the hospital kept telling us not to discuss the problem with our child because his information suggested that the patient could act on the information that was shared or the patient would become more unstable.  The doctor and neorologist also left us with the impression that these seizures weren't very common in happening when the patient was alone and more apt to seizures when around groups of people, suggesting the patient is reaching out for attention or something.  Lastly, we were left with the impression they wouldn't happen in her sleep.

To shorten the story I will say this, we brought her home for a month, had her on Zoloft (anti-anxiety medication up to 100 mg the last 3 weeks) seizures seemed to slow but still happening.  She had them during the day, at night, while sleeping, alone, or in a crowd.  It made her pediatrician, school nurse, and psychiatrist doubt they were psuedos.  We stopped the Zoloft for 2 days (which was supposed to take 5 weeks to build up) and she seemed to have siezures longer and more often.  Not sure yet if its because of stopping the Zoloft or if she would have seized to this degree or not.  At any rate we had to take her to the Emergency when she had the first one at school on the monday three days after stopping Zoloft.  She had them in cycles continually all day.  Doctor still said they were Psuedos because the previos tests were all negative and the convulsions were not as wild, and eratic, or did not cause bodily harm like the other one do that cause memory loss, brain damage, or heart problems.

She maintains her proper heart beat and breathing (oxygen level) just before and directly after the seizures.  So, so far, it seems reasonable they are psuedos.  But, I am not going to blow off the idea that something may be hiding itself now only to make its grand appearance later.

She has (dental) braces, she has reading disabilities, she has recently got a job, a drivers license, her first (non moving violation) ticket, and her first car.  She is very active in church youth group.  She was also very behind in her homework to our surprise.  We are experiencing financial problems, health problems, as well as dealing with some personal family issues. 

So there is plenty in her life that she can be having high anxiety issues from.  We are going to ask to put her on the zoloft again and give it more time while doing more to relieve stress.

You are invited to e-mail me to discuss your issue if you like at [email protected]

 

 

Oh my gosh!!  It's like a living nightmare that came out of nowhere. Begining February 13th 08 our 16 year old woke to mild chest pain.  I had to leave work as she was able to get an appointment right away. 

She had been previously diagnosed with Asthma so I expected something along those lines being the problem.

When the nurse removed the blood pressure cuff from her right arm, her arm began a cycle of tightening and loosening which caused her arm to jerk as though her funny bone was hit.

The doctor suggested we get a lab on her to see if she had a calcium level problem.  Test came back negative but she started moving in her right leg, then both sides, then both sides and head with eyes rolling to back of head.  Full body convulsions.  Repeatedly for a couple hours with the convulsions lasting about a minute or so, but happening every 5 minutes.  She was unresponsive to Adivan, morphine, something else I can't remember, which gave her a burning sensaation through her entire body for a few minutes.  Nothing worked to reduce the seizures.  After spending seven days in the hospital they diagnosed her with psuedo seizures. 

She had blood work, MRI, Cat scan, EEG, and all came back clear.

The physician at the hospital kept telling us not to discuss the problem with our child because his information suggested that the patient could act on the information that was shared or the patient would become more unstable.  The doctor and neorologist also left us with the impression that these seizures weren't very common in happening when the patient was alone and more apt to seizures when around groups of people, suggesting the patient is reaching out for attention or something.  Lastly, we were left with the impression they wouldn't happen in her sleep.

To shorten the story I will say this, we brought her home for a month, had her on Zoloft (anti-anxiety medication up to 100 mg the last 3 weeks) seizures seemed to slow but still happening.  She had them during the day, at night, while sleeping, alone, or in a crowd.  It made her pediatrician, school nurse, and psychiatrist doubt they were psuedos.  We stopped the Zoloft for 2 days (which was supposed to take 5 weeks to build up) and she seemed to have siezures longer and more often.  Not sure yet if its because of stopping the Zoloft or if she would have seized to this degree or not.  At any rate we had to take her to the Emergency when she had the first one at school on the monday three days after stopping Zoloft.  She had them in cycles continually all day.  Doctor still said they were Psuedos because the previos tests were all negative and the convulsions were not as wild, and eratic, or did not cause bodily harm like the other one do that cause memory loss, brain damage, or heart problems.

She maintains her proper heart beat and breathing (oxygen level) just before and directly after the seizures.  So, so far, it seems reasonable they are psuedos.  But, I am not going to blow off the idea that something may be hiding itself now only to make its grand appearance later.

She has (dental) braces, she has reading disabilities, she has recently got a job, a drivers license, her first (non moving violation) ticket, and her first car.  She is very active in church youth group.  She was also very behind in her homework to our surprise.  We are experiencing financial problems, health problems, as well as dealing with some personal family issues. 

So there is plenty in her life that she can be having high anxiety issues from.  We are going to ask to put her on the zoloft again and give it more time while doing more to relieve stress.

You are invited to e-mail me to discuss your issue if you like at [email protected]

 

 

Re: 15 year old daughter having seizures Psuedo or not Psuedo???

Submitted by rhutchi2 on Wed, 2008-03-19 - 23:03

Oh my gosh!!  It's like a living nightmare that came out of nowhere. Begining February 13th 08 our 16 year old woke to mild chest pain.  I had to leave work as she was able to get an appointment right away. 

She had been previously diagnosed with Asthma so I expected something along those lines being the problem.

When the nurse removed the blood pressure cuff from her right arm, her arm began a cycle of tightening and loosening which caused her arm to jerk as though her funny bone was hit.

The doctor suggested we get a lab on her to see if she had a calcium level problem.  Test came back negative but she started moving in her right leg, then both sides, then both sides and head with eyes rolling to back of head.  Full body convulsions.  Repeatedly for a couple hours with the convulsions lasting about a minute or so, but happening every 5 minutes.  She was unresponsive to Adivan, morphine, something else I can't remember, which gave her a burning sensaation through her entire body for a few minutes.  Nothing worked to reduce the seizures.  After spending seven days in the hospital they diagnosed her with psuedo seizures. 

She had blood work, MRI, Cat scan, EEG, and all came back clear.

The physician at the hospital kept telling us not to discuss the problem with our child because his information suggested that the patient could act on the information that was shared or the patient would become more unstable.  The doctor and neorologist also left us with the impression that these seizures weren't very common in happening when the patient was alone and more apt to seizures when around groups of people, suggesting the patient is reaching out for attention or something.  Lastly, we were left with the impression they wouldn't happen in her sleep.

To shorten the story I will say this, we brought her home for a month, had her on Zoloft (anti-anxiety medication up to 100 mg the last 3 weeks) seizures seemed to slow but still happening.  She had them during the day, at night, while sleeping, alone, or in a crowd.  It made her pediatrician, school nurse, and psychiatrist doubt they were psuedos.  We stopped the Zoloft for 2 days (which was supposed to take 5 weeks to build up) and she seemed to have siezures longer and more often.  Not sure yet if its because of stopping the Zoloft or if she would have seized to this degree or not.  At any rate we had to take her to the Emergency when she had the first one at school on the monday three days after stopping Zoloft.  She had them in cycles continually all day.  Doctor still said they were Psuedos because the previos tests were all negative and the convulsions were not as wild, and eratic, or did not cause bodily harm like the other one do that cause memory loss, brain damage, or heart problems.

She maintains her proper heart beat and breathing (oxygen level) just before and directly after the seizures.  So, so far, it seems reasonable they are psuedos.  But, I am not going to blow off the idea that something may be hiding itself now only to make its grand appearance later.

She has (dental) braces, she has reading disabilities, she has recently got a job, a drivers license, her first (non moving violation) ticket, and her first car.  She is very active in church youth group.  She was also very behind in her homework to our surprise.  We are experiencing financial problems, health problems, as well as dealing with some personal family issues. 

So there is plenty in her life that she can be having high anxiety issues from.  We are going to ask to put her on the zoloft again and give it more time while doing more to relieve stress.

You are invited to e-mail me to discuss your issue if you like at [email protected]

 

 

Oh my gosh!!  It's like a living nightmare that came out of nowhere. Begining February 13th 08 our 16 year old woke to mild chest pain.  I had to leave work as she was able to get an appointment right away. 

She had been previously diagnosed with Asthma so I expected something along those lines being the problem.

When the nurse removed the blood pressure cuff from her right arm, her arm began a cycle of tightening and loosening which caused her arm to jerk as though her funny bone was hit.

The doctor suggested we get a lab on her to see if she had a calcium level problem.  Test came back negative but she started moving in her right leg, then both sides, then both sides and head with eyes rolling to back of head.  Full body convulsions.  Repeatedly for a couple hours with the convulsions lasting about a minute or so, but happening every 5 minutes.  She was unresponsive to Adivan, morphine, something else I can't remember, which gave her a burning sensaation through her entire body for a few minutes.  Nothing worked to reduce the seizures.  After spending seven days in the hospital they diagnosed her with psuedo seizures. 

She had blood work, MRI, Cat scan, EEG, and all came back clear.

The physician at the hospital kept telling us not to discuss the problem with our child because his information suggested that the patient could act on the information that was shared or the patient would become more unstable.  The doctor and neorologist also left us with the impression that these seizures weren't very common in happening when the patient was alone and more apt to seizures when around groups of people, suggesting the patient is reaching out for attention or something.  Lastly, we were left with the impression they wouldn't happen in her sleep.

To shorten the story I will say this, we brought her home for a month, had her on Zoloft (anti-anxiety medication up to 100 mg the last 3 weeks) seizures seemed to slow but still happening.  She had them during the day, at night, while sleeping, alone, or in a crowd.  It made her pediatrician, school nurse, and psychiatrist doubt they were psuedos.  We stopped the Zoloft for 2 days (which was supposed to take 5 weeks to build up) and she seemed to have siezures longer and more often.  Not sure yet if its because of stopping the Zoloft or if she would have seized to this degree or not.  At any rate we had to take her to the Emergency when she had the first one at school on the monday three days after stopping Zoloft.  She had them in cycles continually all day.  Doctor still said they were Psuedos because the previos tests were all negative and the convulsions were not as wild, and eratic, or did not cause bodily harm like the other one do that cause memory loss, brain damage, or heart problems.

She maintains her proper heart beat and breathing (oxygen level) just before and directly after the seizures.  So, so far, it seems reasonable they are psuedos.  But, I am not going to blow off the idea that something may be hiding itself now only to make its grand appearance later.

She has (dental) braces, she has reading disabilities, she has recently got a job, a drivers license, her first (non moving violation) ticket, and her first car.  She is very active in church youth group.  She was also very behind in her homework to our surprise.  We are experiencing financial problems, health problems, as well as dealing with some personal family issues. 

So there is plenty in her life that she can be having high anxiety issues from.  We are going to ask to put her on the zoloft again and give it more time while doing more to relieve stress.

You are invited to e-mail me to discuss your issue if you like at [email protected]

 

 

Re: 15 year old daughter having seizures Psuedo or not Psuedo???

Submitted by missy_b on Mon, 2006-05-22 - 20:17
I'm sorry to here about what you and your daughter are going through. I have epilepsy and doctors questioned if all my seizures were epileptic or pseudo seizures. My seizures look like I am having some sort of panic attack. They begin with a rapid heartbeat and heavy breathing and usually stop after 30 seconds, other times they would spread and last a few minutes. I tried trileptal, lamictal, and keppra and nothing helped. I know I have epilepsy because of the MRIs and EEGs. Finally, I switched doctors and he put me in the hospital for a video eeg which lasts several days. They will monitor your brain and watch you on camera for 24/7 waiting for you to have a seizure so they can see if there is any change to the eeg while having the seizure. If there is a change it is epileptic related and if no change it is probably a pseudo. I had a couple seizures there that were typical(rapid heartbeats ect..) and they were in fact epileptic seizures. I would see if there is an epilepsy center in your area to see if your daughter can be admitted to find out once and for all what is happening.

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