Epilepsy Advocacy

There are many ways to get involved as an epilepsy advocate. Learn how to join the cause and raise awareness about the issues affecting the epilepsy community. 

Through public policy, legal advocacy, and grassroots engagement, you can raise awareness about the issues affecting the epilepsy community and seek positive change.  At the Epilepsy Foundation, our advocacy priorities include:

Whether you realize it or not, you’re the expert. You know first-hand the challenges that come from living with epilepsy. Without speaking up and telling your story, elected officials may never know what epilepsy is or what issues are important to you. At the Epilepsy Foundation, we can support you with the tools and resources you need to be an effective advocate.

Become an Epilepsy Advocate

We’re actively working to educate lawmakers about epilepsy, but they need to hear from you. There are several ways you can start talking to lawmakers, share your story, and create positive change.

Learn how to take action and become an advocate

Become an Epilepsy Advocacy Champion

Advocacy champions make relationships with policymakers to bring awareness to the challenges of living with epilepsy. They also play a critical role in connecting grassroots advocates in their state.

Learn how to become an Epilepsy Advocacy Champion

Join Teens Speak Up! & Public Policy Institute

Every other year, we host a conference in Washington, D.C. to bring 175 epilepsy advocates together. Teens with epilepsy can visit the nation's capital to receive advocacy training and talk to lawmakers.

Learn more about the Teens Speak Up! & Public Policy Institute

Become an Epilepsy Policy Advisory Committee Member

Are you passionate about driving systemic change through advocacy? Our advisory committee provides input and guidance on the Epilepsy Foundation’s advocacy and policy agenda.

Apply to be a committee member

About Our Advocacy Priorities

We’re constantly looking at new policies and how they affect the epilepsy community. Through our advocacy work, we’ve identified several priority areas that we focus on.

Learn more about our advocacy priorities

Related Resources

‘How a Bill Becomes A Law’ Infographic

Learn how bills are drafted, considered, and enacted in the United States government.

Epilepsy and Seizures 24/7 Helpline

Call 1-800-332-1000 to speak with an information specialist or submit a question online.

Fill Out the Volunteer Interest Form

Get connected and register for the next available volunteer opportunity.

Start a Fundraiser

Every effort and dollar raised makes an impact for the epilepsy community.

Epilepsy Mom Speaks Out

“The Epilepsy Foundation has given my daughter the confidence to be able to talk to others about epilepsy and to advocate for herself. Through the Teens Speak Up! program, she had the courage to travel to Washington, D.C., and lobby for laws to help people with epilepsy.”

Read More

Help Fund Our Advocacy Efforts

Generous donors are the ones that make our advocacy priorities possible. Giving to the Epilepsy Foundation means you make the world a better, easier, and more manageable place for the 3.4 million people in the U.S. who are living with epilepsy and seizures.